Muscular Dystrophy Association Executive and Leadership Team

Sharon Hesterlee, the President & Chief Executive Officer at Muscular Dystrophy Association, directs the organization's overarching strategy and operational execution. Hesterlee guides the mission to combat muscular dystrophy, ALS, and related diseases, ensuring alignment across research funding, medical services, and public education initiatives. This leadership role involves setting the strategic vision for the organization's impact on patients and the scientific community. Hesterlee oversees the allocation of resources to drive breakthroughs in treatment and care. The President & Chief Executive Officer ensures the organization's financial health and operational efficiency, fostering collaborations that advance the fight against neuromuscular disorders. By championing the MDA's goals, Sharon Hesterlee solidifies the organization's position as a leader in the field.

Pamela Kournetas, the Chief Financial Officer at Muscular Dystrophy Association, manages the organization's financial health and fiscal strategy. Kournetas oversees all financial operations, including budgeting, accounting, and financial reporting, ensuring compliance with non-profit regulations. This critical role involves safeguarding the organization's assets and optimizing resource allocation to maximize impact on research and patient services. The Chief Financial Officer provides essential financial insights to guide strategic decision-making and ensure long-term sustainability. By maintaining rigorous financial controls, Pamela Kournetas supports the organization's ability to fund groundbreaking research and deliver vital community services. Kournetas's expertise ensures the financial integrity necessary to advance the MDA's mission effectively.

Henry Lanman, the Chief Operating Officer & Chief Legal Officer at Muscular Dystrophy Association, directs both the operational efficiency and the legal framework of the organization. Lanman oversees day-to-day operations, ensuring seamless execution of programs and services that support individuals with neuromuscular diseases. Simultaneously, Lanman provides expert legal counsel, managing compliance, risk mitigation, and all legal affairs to protect the organization's interests. This dual role requires a strategic approach to operational scaling and robust legal governance. The Chief Operating Officer & Chief Legal Officer ensures that all activities align with the MDA's mission and adhere to all applicable laws and regulations. By integrating operational excellence with sound legal practice, Henry Lanman strengthens the organization's capacity to serve its community and advance its research objectives.

Heather Urick, the President at Muscular Dystrophy Association, spearheads critical initiatives that advance the organization's mission. Urick focuses on driving strategic partnerships and fostering collaborations that amplify the MDA's impact in combating neuromuscular diseases. This leadership position involves championing programs that provide essential medical and community services to patients and their families. The President oversees key organizational priorities, ensuring progress towards eradicating muscular dystrophy and related conditions. By cultivating relationships with stakeholders and advocating for patient needs, Heather Urick plays a vital part in mobilizing support and resources. Urick's dedication ensures the organization effectively serves its community and advances its research and advocacy efforts.

Morgan Roth, the Chief Marketing Officer at Muscular Dystrophy Association, architects and executes comprehensive marketing and communications strategies. Roth drives public awareness campaigns that highlight the organization's mission, research advancements, and patient support services. This role involves shaping the brand narrative and ensuring consistent messaging across all platforms to engage donors, volunteers, and the broader community. The Chief Marketing Officer oversees digital marketing, public relations, and content development to amplify the MDA's reach and impact. By developing innovative outreach programs, Morgan Roth fosters deeper connections with stakeholders and mobilizes support for critical initiatives. Roth's leadership ensures the organization's story resonates effectively, driving engagement and furthering the fight against neuromuscular diseases.