Muscular Dystrophy Association Executive and Leadership Team

Sharon Hesterlee, the President & Chief Executive Officer at Muscular Dystrophy Association, directs the organization's overarching strategy and operational execution. Hesterlee guides the mission to combat muscular dystrophy, ALS, and related diseases by championing groundbreaking research initiatives and ensuring the delivery of comprehensive medical and community services. This leadership role involves fostering key relationships with research institutions, patient advocacy groups, and healthcare providers to advance the organization's goals. Hesterlee oversees the strategic allocation of resources to maximize impact across research funding, patient support programs, and public education efforts. The President & Chief Executive Officer ensures alignment with the core mission of improving the lives of individuals and families affected by neuromuscular diseases. By driving innovation in patient care and research, Sharon Hesterlee solidifies the organization's position as a leader in the fight against these debilitating conditions.

Henry Lanman, the Chief Operating Officer & Chief Legal Officer at Muscular Dystrophy Association, manages the organization's day-to-day operations and oversees all legal affairs. Lanman ensures efficient and compliant execution of the organization's programs, including research funding, medical services, and community outreach. This dual role requires meticulous attention to operational efficiency, risk management, and adherence to all regulatory requirements. The Chief Operating Officer & Chief Legal Officer directs internal processes, resource allocation, and the implementation of strategic initiatives to support the mission. On the legal front, Lanman provides counsel on corporate governance, contracts, compliance, and intellectual property matters, safeguarding the organization's interests. By integrating operational excellence with robust legal oversight, Henry Lanman ensures the Muscular Dystrophy Association functions effectively and ethically, maximizing its capacity to serve individuals affected by neuromuscular diseases and advance critical research efforts.

Heather Urick, the President at Muscular Dystrophy Association, contributes significantly to the strategic direction and governance of the organization. Urick focuses on advancing the mission to fight muscular dystrophy, ALS, and related diseases through dedicated research funding and comprehensive patient support services. This leadership position involves collaborating with other executives to refine organizational goals and ensure effective program delivery. The President plays a key part in fostering relationships with stakeholders, including research partners, healthcare providers, and community organizations, to amplify the impact of the Muscular Dystrophy Association's work. Urick's involvement ensures that the organization remains at the forefront of scientific discovery and patient advocacy. By providing strategic leadership and oversight, Heather Urick supports the critical efforts to improve the lives of individuals and families impacted by neuromuscular conditions and drives progress toward finding cures and treatments.

Morgan Roth, the Chief Marketing Officer at Muscular Dystrophy Association, spearheads all marketing and communications strategies. Roth drives public awareness campaigns and donor engagement initiatives, crucial for funding research and patient services. This role involves developing and executing integrated marketing plans that highlight the organization's impact and needs across various platforms. The Chief Marketing Officer oversees brand management, digital marketing, content creation, and public relations to effectively communicate the mission to diverse audiences, including patients, families, healthcare professionals, and potential donors. By crafting compelling narratives and leveraging data-driven insights, Roth ensures the organization's message resonates and inspires support. This leadership position is vital for expanding the reach of the Muscular Dystrophy Association and securing the resources necessary to advance its critical work in combating neuromuscular diseases. Morgan Roth's strategic direction amplifies the organization's voice and impact.