Muscular Dystrophy Association Executive and Leadership Team

July, 2026

Leadership Overview

The Muscular Dystrophy Association has 4 executives leading key functions including strategy, marketing, operations, and legal affairs.

Driven by a commitment to eradicating neuromuscular disease, Muscular Dystrophy Association funds vital research, provides essential patient services, and educates the public and healthcare professionals to improve lives.

Leadership Roles at Muscular Dystrophy Association

  • President & Chief Executive Officer - Sharon Hesterlee
  • Chief Operating Officer & Chief Legal Officer - Henry Lanman
  • President - Heather Urick
  • Chief Marketing Officer - Morgan Roth
  • Sharon Hesterlee - President & Chief Executive Officer

    Sharon Hesterlee, the President & Chief Executive Officer at Muscular Dystrophy Association, directs the organization's overarching strategy and operational execution. Hesterlee guides the mission to combat muscular dystrophy, ALS, and related diseases through comprehensive research funding and the delivery of critical medical and community services. This leadership role involves fostering collaborations with healthcare professionals and public education initiatives to advance patient care and understanding. Hesterlee ensures the organization's strategic objectives align with its core purpose of improving the lives of individuals affected by neuromuscular diseases. The President & Chief Executive Officer drives the organization's financial health and operational efficiency, overseeing all departments to maximize impact across the United States. By championing innovation in research and patient support, Sharon Hesterlee solidifies the Muscular Dystrophy Association's position as a leader in the fight against these debilitating conditions.
    Henry Lanman, the Chief Operating Officer & Chief Legal Officer at Muscular Dystrophy Association, manages the organization's day-to-day operations and oversees all legal affairs. Lanman ensures operational efficiency and compliance across all departments, supporting the delivery of medical and community services. This dual role involves developing and implementing policies that uphold the highest standards of governance and ethical practice. The Chief Operating Officer & Chief Legal Officer provides critical legal counsel, mitigating risks and safeguarding the organization's assets and mission. Lanman's operational oversight extends to resource allocation and process optimization, ensuring the effective deployment of funds for research and patient support. By integrating legal expertise with operational management, Henry Lanman strengthens the foundation of the Muscular Dystrophy Association, enabling sustained progress in combating neuromuscular diseases.
    Henry Lanman

    Heather Urick - President

    Heather Urick, the President at Muscular Dystrophy Association, leads specific strategic initiatives and operational functions critical to the organization's mission. Urick focuses on advancing the association's goals in combating muscular dystrophy and related diseases through targeted programs and partnerships. This leadership position involves driving key projects that enhance medical and community services for affected individuals across the United States. The President collaborates closely with other executive leaders to ensure seamless execution of research funding and public education efforts. Urick's responsibilities include fostering strong relationships with stakeholders and advocating for the needs of patients and families. By directing focused efforts and championing organizational priorities, Heather Urick plays a vital role in maximizing the impact and reach of the Muscular Dystrophy Association's life-changing work.

    Morgan Roth - Chief Marketing Officer

    Morgan Roth, the Chief Marketing Officer at Muscular Dystrophy Association, architects and executes comprehensive marketing and communication strategies. Roth drives public awareness campaigns that highlight the organization's mission, research breakthroughs, and patient success stories. This role involves overseeing all branding efforts, digital marketing initiatives, and public relations to engage a broad audience of donors, patients, and advocates. The Chief Marketing Officer ensures consistent messaging across all platforms, amplifying the impact of the Muscular Dystrophy Association's work nationwide. Roth's leadership focuses on expanding the organization's reach and fostering deeper community engagement through innovative outreach programs. By developing compelling narratives and strategic partnerships, Morgan Roth significantly contributes to fundraising efforts and the overall visibility of the organization's critical services and research funding.
    Morgan Roth

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    Frequently Asked Questions Regarding Muscular Dystrophy Association Top Executives and Leadership Team

    Who leads Muscular Dystrophy Association?
    Muscular Dystrophy Association is led by Sharon Hesterlee (President & Chief Executive Officer), along with executives such as Henry Lanman (Chief Operating Officer & Chief Legal Officer) and Heather Urick (President).
    Who is part of Muscular Dystrophy Association’s executive team?
    The executive team of Muscular Dystrophy Association includes leaders such as Sharon Hesterlee (President & Chief Executive Officer), Henry Lanman (Chief Operating Officer & Chief Legal Officer), Heather Urick (President) and other senior executives.
    How many executives does Muscular Dystrophy Association have?
    Muscular Dystrophy Association has 4 executives leading key business areas.
    What roles are included in Muscular Dystrophy Association’s leadership team?
    The leadership team of Muscular Dystrophy Association includes roles such as President & Chief Executive Officer, Chief Operating Officer & Chief Legal Officer, President, Chief Marketing Officer.