Leadership Overview
The Cystic Fibrosis Foundation has 9 executives leading key functions including organizational strategy, financial operations, medical research, and human capital management.
Committed to advancing life-saving research, Cystic Fibrosis Foundation drives global efforts to cure cystic fibrosis while ensuring patients maintain high-quality, productive lives through targeted medical innovation and community support.
Committed to advancing life-saving research, Cystic Fibrosis Foundation drives global efforts to cure cystic fibrosis while ensuring patients maintain high-quality, productive lives through targeted medical innovation and community support.
Leadership Roles at Cystic Fibrosis Foundation
Irena Barisic - Executive Vice President & Chief Operating & Chief Financial Officer
Irena Barisic, the Executive Vice President & Chief Operating & Chief Financial Officer at Cystic Fibrosis Foundation, manages the financial health and operational infrastructure of the organization. Overseeing capital allocation, Barisic ensures that funding flows directly into high-impact research programs and patient support services. This leadership role involves balancing the budget to maximize the efficacy of every dollar donated to the foundation. By optimizing financial reporting and operational systems, Irena Barisic provides the stability required for long-term scientific investment. The Executive Vice President & Chief Operating & Chief Financial Officer coordinates with the board to assess risk and identify growth opportunities within the medical research sector. Through disciplined fiscal management, Barisic secures the resources necessary for the foundation to pursue its mission. This executive function supports the expansion of clinical trials and the development of new therapies, ensuring that the organization remains a leader in the fight against cystic fibrosis.
Gayle Demsher - Cystic Fibrosis Guild President
Gayle Demsher, the Cystic Fibrosis Guild President at Cystic Fibrosis Foundation, leads community engagement and grassroots fundraising efforts across regional networks. Overseeing the guild's activities, Demsher mobilizes volunteers to support the foundation's mission through local events and awareness campaigns. This leadership role involves fostering strong relationships with donors and advocates who contribute to the overall success of the organization. By organizing community-driven initiatives, Gayle Demsher expands the reach of the foundation and increases public awareness regarding cystic fibrosis. The Cystic Fibrosis Guild President coordinates with national leadership to ensure that local efforts align with the broader strategic goals of the foundation. Through dedicated outreach, Demsher strengthens the support system for families affected by the disease. This position requires exceptional interpersonal skills and a passion for driving community action, ultimately providing the necessary funding to sustain critical research and patient care programs nationwide.
Bean Corcoran - President of the Board of Directors Ct. Chapter
Bean Corcoran, the President of the Board of Directors Ct. Chapter at Cystic Fibrosis Foundation, governs regional strategic planning and local stakeholder engagement. Overseeing the chapter's board activities, Corcoran ensures that regional initiatives support the national mission of curing cystic fibrosis. This leadership role involves guiding board members in setting local fundraising targets and community outreach goals. By maintaining strong ties with regional medical partners and donors, Bean Corcoran facilitates the delivery of essential resources to the patient community. The President of the Board of Directors Ct. Chapter coordinates with national leadership to ensure consistency in messaging and operational standards. Through effective governance, Corcoran drives the success of local programs that provide direct support to families. This position requires a strategic mindset and a commitment to regional growth, ensuring that the foundation's impact remains strong and visible across the state while contributing to the broader national effort.
Jennifer McKinnon - Jennifer's Journey Founder and President
Jennifer McKinnon, the Jennifer's Journey Founder and President at Cystic Fibrosis Foundation, leads specialized advocacy and awareness initiatives focused on patient experiences. Overseeing the development of targeted campaigns, McKinnon ensures that the unique needs of the cystic fibrosis community receive national attention. This leadership role involves building partnerships with healthcare providers and patient advocacy groups to improve quality of life. By sharing personal insights and driving public discourse, Jennifer McKinnon influences the direction of support services and research priorities. The Jennifer's Journey Founder and President collaborates with the foundation to integrate patient-centered perspectives into broader organizational strategies. Through persistent advocacy, McKinnon secures the visibility required to sustain long-term interest in finding a cure. This position requires a deep commitment to the patient community and the ability to translate personal experience into actionable change, ultimately enhancing the foundation's ability to serve those living with cystic fibrosis.
Susan Hook - President, National Trustee, County Guild, Nominating Chair & So Cal Chapter (Orange)
Susan Hook, the President, National Trustee, County Guild, Nominating Chair & So Cal Chapter (Orange) at Cystic Fibrosis Foundation, manages multi-faceted leadership responsibilities across regional and national levels. Overseeing the nominating process and guild operations, Hook ensures that the organization maintains strong, effective leadership at every tier. This leadership role involves coordinating with national trustees to align regional activities with the foundation's overarching mission. By fostering collaboration within the Southern California chapter, Susan Hook drives local fundraising and awareness efforts that contribute to the national goal of curing cystic fibrosis. The President, National Trustee, County Guild, Nominating Chair & So Cal Chapter (Orange) monitors the performance of regional boards to ensure operational consistency and strategic focus. Through dedicated service, Hook strengthens the foundation's network of supporters and advocates. This position requires exceptional organizational skills and a commitment to building a sustainable future for all patients affected by the disease.
Marybeth McMahon - Senior Vice President and Chief of Staff
Marybeth McMahon, the Senior Vice President and Chief of Staff at Cystic Fibrosis Foundation, directs internal administrative workflows and cross-departmental alignment. Overseeing the executive office, McMahon ensures that strategic initiatives receive necessary resources to accelerate research breakthroughs. This leadership role involves coordinating complex projects across the Bethesda headquarters to maintain operational excellence. By streamlining communication between the board and senior leadership, Marybeth McMahon facilitates rapid decision-making processes. The Senior Vice President and Chief of Staff monitors organizational performance metrics to guarantee that all departments remain focused on the core mission of curing cystic fibrosis. Through rigorous oversight of internal governance, McMahon supports the broader goal of improving patient outcomes across North American clinical networks. This position requires constant collaboration with other C-suite leaders to refine the long-term vision of the organization while maintaining fiscal responsibility and operational agility in a competitive non-profit landscape.
Emilie Grahl - Chief of Staff To the COFO
Emilie Grahl, the Chief of Staff To the COFO at Cystic Fibrosis Foundation, manages the daily operational priorities for the financial and administrative leadership team. Overseeing the integration of financial data into strategic planning, Grahl ensures that the Chief Operating & Chief Financial Officer receives accurate, actionable insights. This leadership role involves coordinating high-level meetings and tracking progress on key financial milestones. By facilitating communication between the finance department and other functional areas, Emilie Grahl maintains organizational alignment with the mission to cure cystic fibrosis. The Chief of Staff To the COFO monitors project timelines to ensure that resource allocation matches the strategic goals set by the executive team. Through meticulous attention to detail, Grahl supports the efficiency of the entire financial operation. This position requires a deep understanding of the foundation's fiscal structure and a commitment to driving results that directly benefit the patient community.
Yvonne Massenburg - Senior Vice President, Chief People Officer
Yvonne Massenburg, the Senior Vice President, Chief People Officer at Cystic Fibrosis Foundation, directs human capital strategy and organizational culture development. Overseeing talent acquisition and employee retention, Massenburg ensures that the foundation attracts top-tier professionals dedicated to the mission of curing cystic fibrosis. This leadership role involves designing programs that foster professional growth and maintain high levels of staff engagement. By implementing inclusive workplace policies, Yvonne Massenburg builds a resilient team capable of tackling complex medical and administrative challenges. The Senior Vice President, Chief People Officer collaborates with other executives to align workforce capabilities with the long-term strategic objectives of the organization. Through effective performance management and leadership development, Massenburg cultivates a high-performing environment. This position requires a focus on building a culture of excellence that supports the foundation's commitment to patients, ensuring that every employee contributes meaningfully to the overarching goal of improving lives.
Albert Faro - Senior Vice President and Chief Medical Officer
Albert Faro, the Senior Vice President and Chief Medical Officer at Cystic Fibrosis Foundation, directs the scientific research agenda and clinical development programs. Overseeing the evaluation of new therapies, Faro ensures that the foundation invests in the most promising medical innovations to treat cystic fibrosis. This leadership role involves collaborating with global research institutions and pharmaceutical partners to accelerate the path from laboratory discovery to patient care. By monitoring clinical trial progress, Albert Faro maintains the highest standards of medical rigor and safety. The Senior Vice President and Chief Medical Officer provides expert guidance to the board regarding the feasibility and impact of potential research investments. Through strategic oversight of the medical portfolio, Faro drives the development of life-extending treatments. This position requires extensive clinical expertise and a focus on achieving tangible health outcomes, ensuring that the foundation remains at the forefront of medical science in the fight against this disease.
Explore Leadership Teams in Non-Profit & Charitable Organizations
Established in 1952 and headquartered in Colorado Springs, Colorado, Compassion International is a non-for-profit child-advocacy ministry.
Company Leadership MR
MM
JW
KH
Columbia strives to be a community that welcomes diversity, respects the land and fosters the growth of individuals. To sustain that vision, Columbia boasts a full complement of services. There is a vibrant town center featuring Lake Kittamaqundi, a promenade, restaurants, a mall with a variety of shops, department stores and a multiplex movie theater. There are quality recreational and childcare services, schools that rank among the highest in the state, and acres of parks, lakes, ponds and wooded pathways. Despite the breadth and variety of our services, what makes Columbia truly special is an ongoing commitment to the vision espoused by James Rouse, our founding father. As he stated, By creating the image of the rational potential of a city, we generate the power to carry it forward. Without vision, there is no power. At Columbia Association, we consider ourselves keepers of Columbias vision. In support of this vision, Columbia Association offers a vast array of recreational, cultural and community services. In addition, CA maintains nearly 3,600 acres of open space as a permanent asset for residents. Neighborhood amenities include lakes, parks, tot lots, basketball and tennis courts and 95 miles of walking, jogging and biking pathways. Together with your input and commitment we will keep Columbia the special community that James Rouse envisioned.
Company Leadership PN
DM
SM
SM
Founded in 1990, Housing Works, Inc. is a non-profit organization that offers services for people affected to HIV/AIDS by offering housing, job placement, and job training services. They are based in Brooklyn, New York.
Company Leadership
IH
PA
Located in Lafayette CO, the YMCA offers programs including health & fitness classes, youth development, youth sports, childcare and family enrichment.
Company Leadership CC
JH
SC
Frequently Asked Questions Regarding Cystic Fibrosis Foundation Top Executives and Leadership Team
Unlock more people and company data
