LouLou Foundation
Non-Profit & Charitable Organizations · United Kingdom · 11-50 Employees
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Overview
Headquarters
4 Old Park Ln, London, Greater London, W...Phone Number
+44 2072355500Website
www.louloufoundation.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
Signal Type
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About LouLou Foundation
The Loulou Foundation is a private non-profit organization founded in 2015 to support the development of effective therapeutics and eventual cures for CDD. Through robust grant and directed research programs, the Foundation provides tools and resources to basic and clinical scientists to enable the development of disease-modifying therapeutics for CDD. These programs include support for pre-clinical, translational, and clinical research into basic CDKL5 biology, CDD disease mechanisms, and the proof-of-concept studies for gene therapy and genome modifying therapeutics.Explore more
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Revenue
Number of Employees
Type
Funding
Founded In
LouLou Foundation
<$5M
11-50
Private
-
2015
N/A
Company Profile Activity
Activity Insights
LouLou Foundation is experiencing very low activity levels compared to other companies in the Organizations sector.
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LouLou Foundation is drawing exceptional interest within the Organizations industry, suggesting notable developments or strong market momentum, learn more about LouLou Foundation.
LouLou Foundation Tech Stack
A closer look at the technologies used by LouLou Foundation
LouLou Foundation News & Media
Ensuring No Duplicates: Implementing Pulse Infoframe's GUID Model to Transfer and Link Patient Data from Study to Registry for Rare Disease
LONDON and ONTARIO, Canada, Nov. 23, 2021 /PRNewswire/ -- Pulse Infoframe and the Loulou Foundation have announced a collaboration to leverage Pulse Infoframe's novel globally unique identifier (GUID) model to enable linkage of data from the CANDID clinical study, an observational...Marinus Pharmaceuticals Joins the Loulou Foundation in Collaboration on CANDID, a Comprehensive Observational Study in CDKL5 Deficiency Disorder
RADNOR, Pa.--(BUSINESS WIRE)---- $MRNS #MarinusPharma--Marinus Pharmaceuticals Joins the Loulou Foundation in Collaboration on CANDID, a Comprehensive Observational Study in CDKL5 Deficiency DisorderLoulou Foundation Announces Launch of Pre-Competitive Industry Collaboration for CDKL5 Deficiency Disorder Observational Study
LONDON--(BUSINESS WIRE)--The Loulou Foundation, a private foundation dedicated to the development of therapeutics for the neurodevelopmental condition CDKL5 Deficiency Disorder (CDD), announced today that seven biopharmaceutical industry partners together with the Loulou Foundation have formed a pre-competitive consortium to direct a key clinical study for the development of disease-modifying therapeutics for CDD. The seven companies are: Amicus Therapeutics [$FOLD]; Biogen Inc. [$BIIB]; ElaajCDKL5 Deficiency Disorder Voice of the Patient Report Submitted to FDA
NEEDS DATELINE--(BUSINESS WIRE)-- #cdkl5--A report to the FDA describing the voices of patients living with the rare neurological disorder, CDKL5 Deficiency Disorder, was released today.
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Frequently Asked Questions Regarding LouLou Foundation
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The Loulou Foundation is a private non-profit organization founded in 2015 to support the development of effective therapeutics and eventual cures for CDD. Through robust grant and directed research programs, the Foundation provides tools and resources to basic and clinical scientists to enable the development of disease-modifying therapeutics for... Read More
