IndoUSrare
Non-Profit & Charitable Organizations · Virginia, United States · 11-50 Employees
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Overview
Headquarters
13687 Neil Armstrong Ave, Herndon, Virgi...Phone Number
(540) 239-0465Website
www.indousrare.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
Signal Type
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ZI Rank
1
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About IndoUSrare
IndoUSrare is a non-profit organization dedicated to advancing research, awareness, and advocacy for rare diseases by fostering collaborations between stakeholders in the USA and India. The organization aims to bridge the gaps in the under-representation of the Indian diaspora in global clinical trials and enhance access to life-saving therapies. Their programs include the RARE Corporate Alliance, RARE Patient Alliance, and various research initiatives, supporting over 500 rare diseases across more than 50 countries. IndoUSrare actively engages in policy advocacy and organizes global events to promote awareness and collaboration in the rare disease community.Explore more
IndoUSrare Org Chart
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Revenue
Number of Employees
Type
Funding
Founded In
IndoUSrare
<$5M
11-50
Private
-
2019
NV
Nisha VenugopalAssociate Director, Patient-Focused Programs & Operations
Company Profile Activity
Activity Insights
IndoUSrare is experiencing very low activity levels compared to other companies in the Organizations sector.
What does this means?
IndoUSrare is drawing exceptional interest within the Organizations industry, suggesting notable developments or strong market momentum, learn more about IndoUSrare.
IndoUSrare Tech Stack
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IndoUSrare News & Media
IndoUSrare Announces Winners of Pitch4RARE Startup Pitch Competition Advancing Rare Disease Innovation
Pitch4RARE advances global pathways to patient-centered rare disease solutions. GenoPhe Biotech Pvt Ltd, IUVA Labs announced as the winners of Pitch4RARE 2025. HERNDON, VA, UNITED STATES, December 19, 2025 /EINPresswire.com/ -- The Indo-US Organization …Bridging Hope, Building Equity: Indo-US RARE Summit 2025 Charts a Global Path to Cure the Uncurable
The Indo US Bridging RARE Summit 2025 & the Abbey Meyers Khushi Bridging RARE Awards Gala mark a historic moment for cross-border collaboration in rare diseases MANASSAS, VA, UNITED STATES, November 18, 2025 /EINPresswire.com/ -- Co-hosted by the …IndoUSrare Announces 2025 Abbey Meyers Khushi Bridging RARE Award Honorees
Bridging RARE Summit (Nov 2–4, 2025) to spotlight cross-border collaboration, patient impact, and innovation in rare diseases WASHINGTON DC, DC, UNITED STATES, September 17, 2025 /EINPresswire.com/ -- The Indo US Organization for Rare Diseases ( …IndoUSrare Quietly Forges Collaborations Ahead of Bridging RARE Summit—Uniting the Global Village Amid Tariffs, Tensions
Patient-centric nonprofit accelerates practical partnerships across borders to keep rare disease research and care moving forward despite macro headwinds WASHINGTON DC, DC, UNITED STATES, September 9, 2025 /EINPresswire.com/ -- Indo US Organization for …
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IndoUSrare is a non-profit organization dedicated to advancing research, awareness, and advocacy for rare diseases by fostering collaborations between stakeholders in the USA and India. The organization aims to bridge the gaps in the under-representation of the Indian diaspora in global clinical trials and enhance access to life-saving therapies. T... Read More
