EB Research Partnership
Non-Profit & Charitable Organizations · New York, United States · 11-50 Employees
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Overview
Headquarters
244 Madison Ave Ste 104, New York City, ...Phone Number
(646) 844-0902Website
www.ebresearch.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
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About EB Research Partnership
EB Research Partnership is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth.Explore more
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EB Research Partnership News & Media
Dr. Jeff Heddles & EB Research Partnership Launch Matter of Time $1 Million Match to Accelerate EB Treatments and a Cure
A $1 million matching gift from Dr. Jeff Heddles will double every donation, turning momentum from Matter of Time, the new Netflix documentary about Epidermolysis Bullosa (EB), into accelerated research progress. NEW YORK, Feb. 27, 2026 /PRNewswire/ -- EB Research Partnership (EBRP), the...RACE TO CURE EB: MATTER OF TIME KICKS OFF THE FILM’S GLOBAL SPECIAL SCREENING EVENT NOVEMBER 7, 2025 IN SEATTLE
SEATTLE, WA, UNITED STATES, October 17, 2025 /EINPresswire.com/ -- Matter of Time, the award-winning documentary chronicling Eddie Vedder’s 2023 Seattle benefit concerts and the fight to cure Epidermolysis Bullosa (EB), will launch its global special …EB Research Partnership Rings The Opening Bell® at The New York Stock Exchange to Shine Global Spotlight on Epidermolysis Bullosa
Historic moment underscores a decade of progress and the organization's urgent mission to cure Epidermolysis Bullosa and pioneer a path for the 400 million people affected by rare diseases worldwide. NEW YORK, Aug. 20, 2025 /PRNewswire/ -- In a milestone moment underscoring the growing...Historic achievement: FDA approval of Abeona Therapeutics' ZEVASKYN accelerates momentum and expands treatment options for the EB community.
EB Research Partnership ("EBRP") invested in the work that led to ZEVASKYN at Stanford University under their pioneering Venture Philanthropy Model. This approval marks a historic moment for the EB community as the third FDA approved treatment and the first autologous, cell-based gene...
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EB Research Partnership is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth.... Read More
