What is Foundation?
Foundation operates as a specialized nonprofit organization dedicated to the advocacy and support of families and individuals navigating the challenges of 22q11.2 deletion syndrome. The organization serves as a vital nexus for medical professionals, researchers, and affected families, providing access to state-of-the-art clinical resources and fostering a global network of solidarity. Through its commitment to cutting-edge research and community-driven awareness programs, Foundation has established itself as a cornerstone in the rare disease advocacy landscape, bridging the gap between complex genetic diagnostics and actionable patient support.
How much funding has Foundation raised?
Foundation has raised a total of $350K across 1 funding round:
Debt
$350K
Debt (2020): $350K with participation from PPP
Key Investors in Foundation
PPP
Public-Private Partnership
What's next for Foundation?
With this recent capital deployment, Foundation is poised to scale its research infrastructure and expand its clinical outreach programs. The strategic focus will likely shift toward enhancing the accessibility of specialized medical care and deepening the organization's engagement with international health associations. By prioritizing long-term sustainability and data-driven advocacy, the foundation aims to translate its increased financial capacity into measurable improvements in patient outcomes and community awareness, ensuring that the 22q11.2 community receives the comprehensive support necessary for navigating this genetic condition.
See full Foundation company page
