STXBP1 Foundation
Non-Profit & Charitable Organizations · North Carolina, United States · 1-10 Employees
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Overview
Headquarters
128 Buxton Wood Pl, Apex, North Carolina...Website
www.stxbp1disorders.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
Signal Type
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ZI Rank
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About STXBP1 Foundation
The STXBP1 Foundation is a parent-led non-profit organization dedicated to raising awareness and finding a cure for STXBP1-Related Disorder, a rare neurodevelopmental condition. They collaborate with families, physicians, scientists, and pharmaceutical innovators to drive research and provide resources. The foundation focuses on advocacy, genetic testing, and clinical trials to support affected individuals and their families. Their mission includes increasing awareness and accelerating the development of life-changing treatments for STXBP1 disorders.Explore more
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STXBP1 Foundation is experiencing very low activity levels compared to other companies in the Organizations sector.
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STXBP1 Foundation Tech Stack
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STXBP1 Foundation News & Media
Ciitizen Partners with STXBP1 Foundation to Accelerate Patient Outcomes
PALO ALTO, Calif. & PHILADELPHIA--(BUSINESS WIRE)--Ciitizen, a healthcare technology company that helps patients get full control of their medical records to access better treatment options including participation in research and clinical trials, and the STXBP1 Foundation, a patient advocacy group dedicated to finding a cure for STXBP1 Disorders, today announced a partnership to build a digital natural history for STXBP1. This partnership enables the collection of medical records and images for
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The STXBP1 Foundation is a parent-led non-profit organization dedicated to raising awareness and finding a cure for STXBP1-Related Disorder, a rare neurodevelopmental condition. They collaborate with families, physicians, scientists, and pharmaceutical innovators to drive research and provide resources. The foundation focuses on advocacy, genetic t... Read More
