Rare-x
Non-Profit & Charitable Organizations · District of Columbia, United States · 1-10 Employees
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Overview
Headquarters
1012 14th St NW Ste 500, Washington, Dis...Phone Number
(949) 248-7273Website
www.rare-x.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
Signal Type
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ZI Rank
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About Rare-x
RARE-X is a nonprofit platform dedicated to collecting, structuring, and sharing rare disease data to accelerate diagnosis and the development of treatments. It partners with patient advocacy groups to ensure high-quality data collection that is accessible and beneficial for rare disease communities. The platform supports comprehensive disease characterization through symptom-based data collection and engages patients as data stewards. RARE-X aims to empower patient communities and enhance research collaboration across various stakeholders in the rare disease sector.Explore more
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Activity Insights
Rare-x is experiencing very low activity levels compared to other companies in the Organizations sector.
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Rare-x is drawing exceptional interest within the Organizations industry, suggesting notable developments or strong market momentum, learn more about Rare-x.
Rare-x Tech Stack
A closer look at the technologies used by Rare-x
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Rare-x News & Media
Global Gene's RARE-X and Sleep Consortium Launch Sleep Data Collection Initiative to Accelerate Development of Therapies
The Sleep Data Collection Initiative, the first consortium on the RARE-X platform for the collection and sharing of patient-owned data, brings together patient advocacy organizations, researchers, and drug developers looking to address shared symptoms across multiple Sleep-related...RARE-X Launches Pompe Consortium to Support Patient-Owned Data Collection and Aggregated Data Sharing with Patient Community, Biopharma and Research Collaborators
Global Genes' research program, RARE-X, launches Pompe Consortium, gathering together individuals with rare diseases, advocacy organizations, biopharmaceutical companies, and academic researchers, to support patient-owned data collection and aggregated data sharing with patient community,...Global Genes’ RARE-X Issues Open Call to Researchers to Participate in the Inaugural Xcelerate RARE Challenge
The Xcelerate RARE Challenge brings together academic and biopharmaceutical industry researchers and data scientists to use patient reported data to address unanswered research questions about rare diseases. (PRWeb May 31, 2023) Read the full story at https://www.prweb.com/releases/global_genes_rare_x_issues_open_call_to_researchers_to_participate_in_the_inaugural_xcelerate_rare_challenge/prweb19352841.htmSleep Consortium Launches Sleep Patient Data Collection Initiative to Accelerate Therapeutic Development
Sleep Consortium and RARE-X, the Global Genes research program and patient-owned data collection platform, to collaborate on the Sleep Data Collection Initiative to accelerate the development of effective treatments for central disorders of hypersomnolence (CDoH) and related conditions. (PRWeb May 23, 2023) Read the full story at https://www.prweb.com/releases/sleep_consortium_launches_sleep_patient_data_collection_initiative_to_accelerate_therapeutic_development/prweb19352819.htm
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RARE-X is a nonprofit platform dedicated to collecting, structuring, and sharing rare disease data to accelerate diagnosis and the development of treatments. It partners with patient advocacy groups to ensure high-quality data collection that is accessible and beneficial for rare disease communities. The platform supports comprehensive disease char... Read More
