Rare Access Action Project
Non-Profit & Charitable Organizations · District of Columbia, United States · 11-50 Employees
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Overview
Headquarters
1012 14th St NW Ste 500, Washington, Dis...Phone Number
(202) 697-7273Revenue
<$5 MillionIndustry
ZI Rank: 1
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About Rare Access Action Project
The Rare Access Action Project (RAAP) is a coalition of life sciences and patient stakeholders dedicated to advocating for rare disease patients and their families. RAAP focuses on developing creative policy solutions to improve access to care and treatments for those affected by rare diseases. Their initiatives are designed to be actionable and measurable, supporting the needs of the rare disease community. The organization engages with a variety of stakeholders to ensure that patients receive the necessary support and resources.Explore more
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Activity Insights
Rare Access Action Project is experiencing very low activity levels compared to other companies in the Organizations sector.
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Rare Access Action Project is drawing exceptional interest within the Organizations industry, suggesting notable developments or strong market momentum, learn more about Rare Access Action Project.
Rare Access Action Project Tech Stack
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Rare Access Action Project News & Media
RAAP Policy Study: Medicare's "Maximum Fair Price" Is Not a Transferable Model for State Drug Pricing
WASHINGTON, Feb. 18, 2026 /PRNewswire/ -- As states explore new strategies to address prescription drug affordability, the Rare Access Action Project (RAAP) today released an issue paper warning policymakers against attempting to replicate Medicare's Maximum Fair Price (MFP) framework at...RAAP Policy Study Release Solving for Access and Affordability: PDABs are Not the Answer
WASHINGTON, Aug. 6, 2025 /PRNewswire/ -- The Rare Access Action Project (RAAP), today released its policy study on Prescription Drug Affordability Boards (PDAB). RAAP has been clear for years that PDABs are not the solution to helping patients living with a rare disease lower the cost of...STOP: Accelerated Approval As A Proxy For High Drug Costs Is Misguided
WASHINGTON, Jan. 11, 2022 /PRNewswire/ -- The Rare Access Action Project, (RAAP) submitted comments to the Oregon Health Authority's (OHA) proposed renewal and amendment of its Section 1115 waiver for the July 1, 2022 – June 30, 2027, demonstration period. RAAP supports OHA's efforts to...RAAP Launches TV & Digital Campaign - PR Newswire
/PRNewswire/ --The Rare Access Action Project, (RAAP), announced today they will be taking their fight to close patient out of pocket costs and protect...
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The Rare Access Action Project (RAAP) is a coalition of life sciences and patient stakeholders dedicated to advocating for rare disease patients and their families. RAAP focuses on developing creative policy solutions to improve access to care and treatments for those affected by rare diseases. Their initiatives are designed to be actionable and me... Read More
