MPS Society
Non-Profit & Charitable Organizations · North Carolina, United States · 1-10 Employees
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Overview
Headquarters
PO Box 14686, Durham, North Carolina, 27...Phone Number
(919) 806-0101Website
www.mpssociety.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
Signal Type
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ZI Rank
1
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About MPS Society
The National MPS Society is dedicated to curing, supporting, and advocating for individuals and families affected by mucopolysaccharidosis (MPS) and mucolipidosis (ML), rare genetic diseases that currently have no cure. The organization focuses on supporting research, providing valuable resources to families, and increasing awareness among the public and professionals. They offer various programs and resources for family support, fundraising activities, and advocacy efforts to influence lawmakers. Their community-driven initiatives aim to connect affected families and share their stories to foster understanding and support.Explore more
MPS Society Org Chart
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Activity Insights
MPS Society is experiencing very low activity levels compared to other companies in the Organizations sector.
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MPS Society financials insights
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2021
Debt
$100K
MPS Society Tech Stack
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Most Recent Scoops
Project
A front-line source has indicated that focusing on shipping logistics is one of the operations department's biggest priorities over the next three months.
Logistics / Supply Chain
Project
A front-line source has indicated that focusing on relocation is one of the operations department's biggest priorities over the next three months.
Project
A front-line source has indicated that focusing on conferences for families with 1000 attendees is the company's largest upcoming initiative.
Funding
MPS Society News & Media
National MPS Society Announces $4 Million Investment in Groundbreaking MPS IIIB Gene Therapy Program
Innovative Euro–U.S. collaboration aims to rapidly advance treatment for children with Sanfilippo syndrome type B. DURHAM, NC, UNITED STATES, April 27, 2026 /EINPresswire.com/ -- The National MPS Society announced a landmark $4 million donor-directed …Celebrating Progress and Demanding More: the National MPS Society Celebrates Newborn Screening Month
National MPS Society celebrates NC’s milestone in newborn screening for MPS II and calls for nationwide access to early diagnosis and care. DURHAM, NC, UNITED STATES, September 10, 2025 /EINPresswire.com/ -- September is National Newborn Screening …Shining a Light on Diagnosis for Rare Genetic Disease Patients
CAMBRIDGE, Mass., Oct. 15, 2018 /PRNewswire/ -- Patients with rare genetic diseases can face a difficult path to a proper diagnosis. Because there is a lower awareness of these diseases and they have symptoms which may initially be confused with more common diseases, diagnosis can take...
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Frequently Asked Questions Regarding MPS Society
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The National MPS Society is dedicated to curing, supporting, and advocating for individuals and families affected by mucopolysaccharidosis (MPS) and mucolipidosis (ML), rare genetic diseases that currently have no cure. The organization focuses on supporting research, providing valuable resources to families, and increasing awareness among the publ... Read More
