Galactosemia Foundation
Non-Profit & Charitable Organizations · New York, United States · 11-50 Employees
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Overview
Headquarters
350 Northern Blvd Ste 324-1079, Albany, ...Phone Number
(866) 900-7421Website
www.galactosemia.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
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About Galactosemia Foundation
The Galactosemia Foundation connects families affected by galactosemia and supports networking efforts between clinicians and researchers. They provide resources, advocacy, and community support for individuals diagnosed with this rare genetic disorder, including toolkits for newly diagnosed families and guidelines for living with galactosemia. The foundation also organizes events, such as conferences, to foster collaboration and share information. Their intended clients include families, patients of all ages, and healthcare professionals involved in the care and treatment of galactosemia.Explore more
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Galactosemia Foundation News & Media
The Galactosemia Foundation and National Organization for Rare Disorders (NORD) Jointly Publish First "Voice of the Patient" Report to Help Inform the FDA and Researchers
WASHINGTON and ALBANY, N.Y., July 6, 2023 /PRNewswire/ -- The Galactosemia Foundation and the National Organization for Rare Disorders (NORD)® today announced they have jointly published the galactosemia community's first "Voice of the Patient" report. This report provides a comprehensive...Galactosemia Foundation Urges FDA to Incorporate Voice of the Patient in Review of Potential First Treatment for Children with Life-Altering Rare Disease
Govorestat (AT-007) demonstrates consistent and sustained clinical benefit in children with galactosemia across symptoms of greatest concern to patients and caregivers ALBANY, N.Y., April 26, 2023 /PRNewswire/ -- The Galactosemia Foundation, a non-profit charitable organization that...Applied Therapeutics to Sponsor and Present at the 2022 Galactosemia Foundation Conference
NEW YORK, July 28, 2022 (GLOBE NEWSWIRE) -- Applied Therapeutics, Inc. (Nasdaq: APLT), a clinical-stage biopharmaceutical company developing a pipeline of novel drug candidates against validated molecular targets in indications of high unmet medical need, today announced its sponsorship and presentations at the 2022 Galactosemia Foundation Conference being held July 28-30 in Orlando, Florida.New Resource for the Galactosemia Community Launches to Empower Families as They Navigate Lifelong Genetic Disease
ALBANY, N.Y. & LAKE FOREST, Ill.--(BUSINESS WIRE)--The Galactosemia Foundation and Jaguar Gene Therapy launched "Navigating Galactosemia Life Stages: A Handbook for the Galactosemia Community."
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The Galactosemia Foundation connects families affected by galactosemia and supports networking efforts between clinicians and researchers. They provide resources, advocacy, and community support for individuals diagnosed with this rare genetic disorder, including toolkits for newly diagnosed families and guidelines for living with galactosemia. The... Read More
