Galactosemia Foundation

The Galactosemia Foundation connects families affected by galactosemia and supports networking efforts between clinicians and researchers. They provide resources, advocacy, and community support for individuals diagnosed with this rare genetic disorder, including toolkits for newly diagnosed families and guidelines for living with galactosemia. The... foundation also organizes events, such as conferences, to foster collaboration and share information. Their intended clients include families, patients of all ages, and healthcare professionals involved in the care and treatment of galactosemia.Read More