FTD Registry
Non-Profit & Charitable Organizations · Pennsylvania, United States · 11-50 Employees
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Overview
Headquarters
2700 Horizon Dr Ste 120, King Of Prussia...Phone Number
(888) 840-9980Website
www.ftdregistry.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
Signal Type
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ZI Rank
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About FTD Registry
The FTD Disorders Registry is an online platform dedicated to advancing research and finding cures for frontotemporal degeneration (FTD) and related disorders. It invites individuals impacted by FTD, including diagnosed patients, caregivers, and healthcare professionals, to contribute their experiences and insights. By joining the registry, members can support scientific initiatives and help accelerate the development of therapies. The organization focuses on building a community to collaborate and progress toward the goal of ending FTD.Explore more
FTD Registry Org Chart
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Activity Insights
FTD Registry is experiencing very low activity levels compared to other companies in the Organizations sector.
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2020
Debt
$150K
FTD Registry Tech Stack
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FTD Registry News & Media
1,200+ People Impacted by Young-Onset Dementia Gather for AFTD's Annual Education Conference
KING OF PRUSSIA, Pa., April 15, 2022 /PRNewswire/ -- More than one thousand people impacted by frontotemporal degeneration (FTD), the most common dementia under 60, came together to connect, learn, and engage with a community that understands the disease at the Association for...Donald Newhouse Honored for Work Targeting Primary Progressive Aphasia, All Forms of Most Common Dementia under 60
NEW YORK , April 1, 2022 /PRNewswire/ -- On Wednesday night, at the Ziegfeld Ballroom in New York City, The Association for Frontotemporal Degeneration (AFTD) honored Donald Newhouse at its 2022 Hope Rising Benefit. Donald lost his wife, Susan Marley Newhouse, to primary progressive...ADDF and AFTD Partner to Support Wave Life Sciences' FTD and ALS Clinical Program
NEW YORK, Jan. 25, 2022 /PRNewswire/ -- The Alzheimer's Drug Discovery Foundation (ADDF) and The Association for Frontotemporal Degeneration (AFTD) announced today that they have partnered to support Wave Life Sciences' FOCUS-C9 Phase 1b/2a clinical trial investigating WVE-004 as a...New Report Will Help the FDA to Evaluate Future Treatments for Frontotemporal Degeneration
KING OF PRUSSIA, Pa., Oct. 27, 2021 /PRNewswire/ -- Today, The Association for Frontotemporal Degeneration (AFTD) released Frontotemporal Degeneration (FTD): A Voice of the Patient Report. This report will provide the FDA with data and insights to evaluate future studies and treatments...
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Frequently Asked Questions Regarding FTD Registry
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The FTD Disorders Registry is an online platform dedicated to advancing research and finding cures for frontotemporal degeneration (FTD) and related disorders. It invites individuals impacted by FTD, including diagnosed patients, caregivers, and healthcare professionals, to contribute their experiences and insights. By joining the registry, members... Read More
