FSHD Society
Non-Profit & Charitable Organizations · Massachusetts, United States · 11-50 Employees
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Overview
Headquarters
75 N Main St PMB 1073, Randolph, Massach...Phone Number
(781) 301-6060Website
www.fshdsociety.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
Signal Type
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May
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ZI Rank
1
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About FSHD Society
Founded in 1991, FSHD Society is a grassroots network of individuals with FSH muscular dystrophy, their families, and research activists. The Society helps people through education and outreach; funds scientific and medical research; and advocates for increased government and industry investment in FSHD. The company is headquartered in Lexington, Massachusetts.Explore more
FSHD Society Org Chart
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Activity Insights
FSHD Society is experiencing very low activity levels compared to other companies in the Organizations sector.
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FSHD Society is drawing exceptional interest within the Organizations industry, suggesting notable developments or strong market momentum, learn more about FSHD Society.
FSHD Society financials insights
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2020
Debt
$150K
2021
Debt
$285K
FSHD Society Tech Stack
A closer look at the technologies used by FSHD Society
Most Recent Scoops
Project
, according to a mid-level source in diversity & inclusion, began leveraging AI-driven document drafting within the last six to twelve months.
Employee Relations, Artificial Intelligence, Company Culture & Policy, Diversity & Inclusion
Project
, according to a mid-level source in diversity & inclusion, is planning to start reviewing the current workforce to identify opportunities for improvement, such as gaps or overages in coverage and performance trends, over the next twelve months.
Employee Relations, Company Culture & Policy, Diversity & Inclusion
Pain Point
, according to a mid-level source in diversity & inclusion, is experiencing challenges related to training programs.
Pain Point, Training, Employee Relations, Company Culture & Policy, Diversity & Inclusion
Project
, according to a mid-level source in diversity & inclusion, is planning to begin initiatives related to employee retention within three months. FSHD Society is expected to increase permanent employee workforce to support these efforts.
Employee Relations, Employee Retention, Company Culture & Policy, Diversity & Inclusion, HR Operations
Project
Employee Relations, Company Culture & Policy, Diversity & Inclusion
FSHD Society News & Media
The FSHD Society, SOLVE FSHD, and the FSHD CTRN Announce Launch of Industry Collaborative to Improve FSHD Clinical Trials
The FSHD Industry Collaborative is a first-of-its-kind, multi-stakeholder initiative designed to improve how FSHD clinical trials are designed, executed, and evaluated RANDOLPH, Mass. and VANCOUVER, BC, April 8, 2026 /PRNewswire/ -- The FSHD Society, a patient-driven organization...Organizations Join Forces to Map How Human Muscle Regenerates
Muscular Dystrophy Association-led research collaboration with FSHD Society, LGMD2L Foundation, and Parent Project Muscular Dystrophy to fund Abigail Mackey, PhD, at Copenhagen University Hospital to decode muscle regeneration. Muscular Dystrophy Association-led research collaboration with FSHD Society, LGMD2L Foundation, and Parent Project Muscular Dystrophy to fund Abigail Mackey, PhD, at Copenhagen University Hospital to decode muscle regeneration.Global FSHD Innovation Hub Expands Board to Strengthen Leadership and Impact
RANDOLPH, Mass., Nov. 24, 2025 /PRNewswire/ -- The Global FSHD Innovation Hub, an initiative by the FSHD Society to accelerate the development of therapies for facioscapulohumeral muscular dystrophy (FSHD), has announced the addition of four new members to its Board of Directors: Neil...VOLUNTEERS IMPACTED BY FSH MUSCULAR DYSTROPHY RALLY FOR NATIONAL FUNDRAISING EVENTS
The Walk & Roll to Cure FSHD brings communities together to raise funds and awareness RANDOLPH, Mass., Sept. 5, 2025 /PRNewswire/ -- This September and October, families, friends, and neighbors across the U.S. and Canada will gather for the Walk & Roll to Cure FSHD. These events unite...
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Frequently Asked Questions Regarding FSHD Society
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Founded in 1991, FSHD Society is a grassroots network of individuals with FSH muscular dystrophy, their families, and research activists. The Society helps people through education and outreach; funds scientific and medical research; and advocates for increased government and industry investment in FSHD. The company is headquartered in Lexington, M... Read More
