FSHD Society
Highly Engaged Employees
Highly Engaged EmployeesNon-Profit & Charitable Organizations · Massachusetts, United States · 11-50 Employees
View Company Info for Free
Overview
Headquarters
75 N Main St 1073, Randolph, Massachuset...Phone Number
(781) 301-6060Website
www.fshdsociety.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
Signal Type
Dec
Jan
Feb
Mar
Apr
May
ZI Rank
2
1
1
2
1
1
About FSHD Society
Founded in 1991, FSHD Society is a grassroots network of individuals with FSH muscular dystrophy, their families, and research activists. The Society helps people through education and outreach; funds scientific and medical research; and advocates for increased government and industry investment in FSHD. The company is headquartered in Lexington, Massachusetts.Explore more
FSHD Society Org Chart
Sell smarter with deeper company insights.
ZoomInfo gives you access to real-time firmographics, buying signals, org charts, and decision-makers - helping your GTM teams prioritize accounts, personalize outreach with AI-driven automation, and close deals faster.
Is FSHD Society your ideal customer? 
Let us give you the heads up on whether it's a good time to reach out
Congratulate Masked Content for being promoted to Masked Content at FSHD Society
FSHD Society, which may be a good buyer, showed buying intent in Masked Content Topic
Product Launch: Get notified when FSHD Society launches new products
Check out if FSHD Society is spiking on competitors!
Funding: Get notified immidiatlly once FSHD Society has new funding data
Website visits: Recent activity has been detected on your website
Competitive Alert! Recent activity has been detected by your competitor Masked Content
Check if FSHD Society has recently received funding, and reach out quickly before it becomes old news!
Earning: See what the market has to say on FSHD Society recently announced quarterly report
Click to see if FSHD Society had a recent Job posting/layoffs
Recommended Actions
Find VP level buyers at FSHD Society
Find more new buyers
Compare Similar Companies to FSHD Society
Compare insights from companies similar to FSHD Society, focusing on performance, financial data, growth rates, and unique benchmarks to identify key industry trends and opportunities.
Revenue
Number of Employees
Type
Funding
Founded In
Company Profile Activity
Activity Insights
FSHD Society is experiencing very low activity levels compared to other companies in the Organizations sector.
What does this means?
FSHD Society is drawing exceptional interest within the Organizations industry, suggesting notable developments or strong market momentum, learn more about FSHD Society.
FSHD Society financials insights
Gather financial insights about FSHD Society, including details on funding rounds, investors, total funding, and acquisitions, to gain a comprehensive understanding of their financial strategy.
2020
Debt
$150K
2021
Debt
$285K
FSHD Society Tech Stack
A closer look at the technologies used by FSHD Society
Most Recent Scoops
Project
, according to a mid-level source in diversity & inclusion, began leveraging AI-driven document drafting within the last six to twelve months.
Employee Relations, Artificial Intelligence, Company Culture & Policy, Diversity & Inclusion
Project
, according to a mid-level source in diversity & inclusion, is planning to start reviewing the current workforce to identify opportunities for improvement, such as gaps or overages in coverage and performance trends, over the next twelve months.
Employee Relations, Company Culture & Policy, Diversity & Inclusion
Pain Point
, according to a mid-level source in diversity & inclusion, is experiencing challenges related to training programs.
Pain Point, Training, Employee Relations, Company Culture & Policy, Diversity & Inclusion
Project
, according to a mid-level source in diversity & inclusion, is planning to begin initiatives related to employee retention within three months. FSHD Society is expected to increase permanent employee workforce to support these efforts.
Employee Relations, Employee Retention, Company Culture & Policy, Diversity & Inclusion, HR Operations
Project
Employee Relations, Company Culture & Policy, Diversity & Inclusion
FSHD Society News & Media
Organizations Join Forces to Map How Human Muscle Regenerates
Muscular Dystrophy Association-led research collaboration with FSHD Society, LGMD2L Foundation, and Parent Project Muscular Dystrophy to fund Abigail Mackey, PhD, at Copenhagen University Hospital to decode muscle regeneration. Muscular Dystrophy Association-led research collaboration with FSHD Society, LGMD2L Foundation, and Parent Project Muscular Dystrophy to fund Abigail Mackey, PhD, at Copenhagen University Hospital to decode muscle regeneration.Global FSHD Innovation Hub Expands Board to Strengthen Leadership and Impact
RANDOLPH, Mass., Nov. 24, 2025 /PRNewswire/ -- The Global FSHD Innovation Hub, an initiative by the FSHD Society to accelerate the development of therapies for facioscapulohumeral muscular dystrophy (FSHD), has announced the addition of four new members to its Board of Directors: Neil...VOLUNTEERS IMPACTED BY FSH MUSCULAR DYSTROPHY RALLY FOR NATIONAL FUNDRAISING EVENTS
The Walk & Roll to Cure FSHD brings communities together to raise funds and awareness RANDOLPH, Mass., Sept. 5, 2025 /PRNewswire/ -- This September and October, families, friends, and neighbors across the U.S. and Canada will gather for the Walk & Roll to Cure FSHD. These events unite...New Research Portal Offers Access to Longitudinal FSHD Patient Data
BetterLife Research Gateway offers unprecedented access to real-world data from people living with FSHD RANDOLPH, Mass., June 23, 2025 /PRNewswire-PRWeb/ -- At the FSHD Society's 32nd annual International Research Congress (IRC), held June 12th and 13th in Amsterdam, Amanda Hill, Senior...
Read more news
Top Non-Profit & Charitable Organizations Companies
Top companies in Canada by revenue
Top companies in Australia by revenue
Frequently Asked Questions Regarding FSHD Society
Sign Up For FreeTo access detailed company insights
Founded in 1991, FSHD Society is a grassroots network of individuals with FSH muscular dystrophy, their families, and research activists. The Society helps people through education and outreach; funds scientific and medical research; and advocates for increased government and industry investment in FSHD. The company is headquartered in Lexington, M... Read More
