FOXG1 Research Foundation
Non-Profit & Charitable Organizations · New York, United States · 1-10 Employees
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Overview
Headquarters
50 Sintsink Dr E Apt 6, Port Washington,...Website
www.foxg1research.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
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About FOXG1 Research Foundation
The FOXG1 Research Foundation is a parent-led global organization dedicated to advancing gene therapy for FOXG1 syndrome, a rare neurological disorder affecting children's brain development. They aim to begin patient clinical trials in 2026, providing hope for treatment where none currently exists. The foundation supports and advocates for families and patients while fostering collaboration among parents, donors, and researchers. Their mission is to drive research and fundraising efforts to transform the lives of those impacted by FOXG1 syndrome.Explore more
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FOXG1 Research Foundation News & Media
Charles River Collaborates with Patient Advocacy Group, FOXG1 Research Foundation to Advance Rare Disease Gene Therapy Development
WILMINGTON, Mass.--(BUSINESS WIRE)--Charles River Laboratories International, Inc. (NYSE: CRL) announced today a collaboration with the FOXG1 Research Foundation (FRF) highlighting the patient advocacy group’s model to independently drive drug development through the clinical phase. The parent-led global organization driving the research to cure FOXG1 syndrome and related neurological disorders will collaborate with Charles River in a comprehensive gene therapy contract development and manufactThe FOXG1 Research Foundation Appoints Dr. Soo-Kyung Lee as Chief Scientific Officer to Lead Therapeutics for FOXG1 Syndrome, an Autism-related Rare Disease
The FOXG1 Research Foundation (FRF), a parent-led rare disease patient organization focused on driving therapeutics for FOXG1 syndrome, an Autism-related neurological condition, announced today the appointment of Dr. Soo-Kyung Lee as the new Chief Scientific Officer of the FOXG1 Research Foundation (FRF). Dr. Lee’s dedication to curing FOXG1 syndrome is deeply personal as a mother to Yuna, diagnosed with FOXG1 syndrome [PR.com]FOXG1 Research Foundation Hosts Napa Valley Charity Golf Tournament to Accelerate Research for Pediatric Neurological Disorder
Scientists believe FOXG1 may hold the key to unlocking brain disorders affecting millions, including autism, Alzheimer’s, brain tumors and more. [PR.com]FOXG1 Research Foundation’s Hourinaz Behesti PhD to Present at BIO CEO & Investor Conference 2022
The FOXG1 Research Foundation, the rare disease patient organization that is driving the science to find treatments for FOXG1 syndrome, will be presenting at the BIO CEO & Conference on February 14 to discuss Tapping into Therapeutic Development for Rare CNS Disorders. Dir. of Science, Hourinaz Behesti will discuss why FOXG1 is a viable target for biotech investment, and the suite of assets that the FRF has developed and [PR.com]
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The FOXG1 Research Foundation is a parent-led global organization dedicated to advancing gene therapy for FOXG1 syndrome, a rare neurological disorder affecting children's brain development. They aim to begin patient clinical trials in 2026, providing hope for treatment where none currently exists. The foundation supports and advocates for families... Read More
