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ECD Global Alliance

Non-Profit & Charitable Organizations · Louisiana, United States · <25 Employees

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About

Headquarters

PO Box 775, Deridder, Louisiana, 70634, United ...

Phone Number

(337) 515-6987

Revenue

<$5 Million

Industry

Charitable Organizations & Foundations Organizations

Who is ECD Global Alliance

The ECD Global Alliance is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. Towards this mission the organization will work with the global community to accomplish the following: Raise awareness of ECD. The purpose of this activity is to facilitate early diagnosis of the disease and to stimulate concern and efforts to increase knowledge regarding the disease and treatments. Provide support to those affected by the disease. The purpose of this activity is to lessen the burden as much as possible to those affected by ECD. This support will include, but not necessarily be limited to, providing information, referrals, and one-on-one contact with others affected by the disease. Advocate for and support research programs. The purpose of such research programs is to learn more about (a) the disease, (b) effective treatments for the disease, (c) possible cures, and/or (d) avenues to prevent the disease altogether. This will include, but not necessarily be limited to, collaborating with medical personnel, research personnel and other health organizations to help define areas where research is needed, to fund research, and to help promote the benefits of ECD research to other health agencies. The alliance will also serve as a conduit to transfer needed information from its members to the research community per documented guidelines. Share educational material and facilitate information sharing among interested parties regarding ECD. This will include providing current, reliable, and factual information related to ECD to patients, loved ones, medical personnel, research personnel, media, and other organizations. It will also include promoting, sponsoring and conducting workshops, symposiums and other meetings to promote the goals of the alliance.Read more

ECD Global Alliance's Social MediaPopular SearchesEcd Global AllianceErdheim-Chester DiseaseECD GLOBAL ALLIANCE IncErdheim-ChesterECD Global Alliance isSIC Code 83,839NAICS Code 81,813Show more

ECD Global Alliance Org Chart

C. Grace

Chief Executive Officer

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Diane Schriner

Vice President

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Frequently Asked Questions regarding ECD Global Alliance

Where is ECD Global Alliance located?
ECD Global Alliance's headquarters are located at PO Box 775, Deridder, Louisiana, 70634, United States
What is ECD Global Alliance's phone number?
ECD Global Alliance's phone number is (337) 515-6987
What is ECD Global Alliance's official website?
ECD Global Alliance's official website is www.erdheim-chester.org
What is ECD Global Alliance's Revenue?
ECD Global Alliance's revenue is <$5 Million
What is ECD Global Alliance's SIC code?
ECD Global Alliance's SIC: 83,839
What is ECD Global Alliance's NAICS code?
ECD Global Alliance's NAICS: 81,813
How many employees does ECD Global Alliance have?
ECD Global Alliance has <25 employees
What industry does ECD Global Alliance belong to?
ECD Global Alliance is in the industry of: Charitable Organizations & Foundations, Organizations
What is ECD Global Alliance competition?
ECD Global Alliance top competitors include: Desmoid Tumor Research Foundation, The ML4 Foundation, ICP Care, Alport Syndrome Foundation
What technology does ECD Global Alliance use?
Some of the popular technologies that ECD Global Alliance uses are: Microsoft 365, Google Workspace (formerly G Suite), BlueHost, Microsoft Exchange Online
Who is the CEO of ECD Global Alliance?
ECD Global Alliance's CEO is C. Grace Whiting
How do I contact ECD Global Alliance?
ECD Global Alliance contact info: Phone number: (337) 515-6987 Website: www.erdheim-chester.org
What does ECD Global Alliance do?

The ECD Global Alliance is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. Towards this mission the organization will work with the global community to accomplish the following: Raise awareness of ECD. The purpose of this activity is to facilitate early diagnosis of the disease and to stimulate concern a... nd efforts to increase knowledge regarding the disease and treatments. Provide support to those affected by the disease. The purpose of this activity is to lessen the burden as much as possible to those affected by ECD. This support will include, but not necessarily be limited to, providing information, referrals, and one-on-one contact with others affected by the disease. Advocate for and support research programs. The purpose of such research programs is to learn more about (a) the disease, (b) effective treatments for the disease, (c) possible cures, and/or (d) avenues to prevent the disease altogether. This will include, but not necessarily be limited to, collaborating with medical personnel, research personnel and other health organizations to help define areas where research is needed, to fund research, and to help promote the benefits of ECD research to other health agencies. The alliance will also serve as a conduit to transfer needed information from its members to the research community per documented guidelines. Share educational material and facilitate information sharing among interested parties regarding ECD. This will include providing current, reliable, and factual information related to ECD to patients, loved ones, medical personnel, research personnel, media, and other organizations. It will also include promoting, sponsoring and conducting workshops, symposiums and other meetings to promote the goals of the alliance.Read More

What are ECD Global Alliance social media links?
ECD Global Alliance Linkedin page ECD Global Alliance Twitter page ECD Global Alliance Facebook page
Is ECD Global Alliance a public company?
ECD Global Alliance is private company therefore does not currently have an official ticker symbol
See more information about ECD Global Alliance

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