Duchenne Registry Managers
Healthcare Software · New Jersey, United States · 11-50 Employees
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Overview
Headquarters
401 Hackensack Ave Fl 9, Hackensack, New...Phone Number
(888) 520-8675Website
www.duchenneregistry.orgRevenue
<$5 MillionIndustry
ZI Rank: 1
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About Duchenne Registry Managers
The Duchenne Registry is an online patient-report registry aimed at individuals with Duchenne or Becker muscular dystrophy, as well as female carriers and those with related gene variants. It allows patients and families to self-register and contribute data on various health topics to support research and the development of new treatments. The registry operates a mobile app platform for easy participation and data entry, fostering a global network of patients to enhance understanding and care for Duchenne. Additionally, the organization offers free genetic testing and counseling through its Decode Duchenne initiative, primarily for residents of the United States and Canada.Explore more
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Duchenne Registry Managers News & Media
Parent Project Muscular Dystrophy and Sarepta Therapeutics Partner to Launch Duchenne Outcomes Research Interchange, a Patient-Data Warehouse Serving the Entire Duchenne Community
HACKENSACK, N.J. and CAMBRIDGE, Mass., Sept. 7, 2018 /PRNewswire/ -- Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), announced plans today to launch a patient- and physician-reported outcomes data...
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The Duchenne Registry is an online patient-report registry aimed at individuals with Duchenne or Becker muscular dystrophy, as well as female carriers and those with related gene variants. It allows patients and families to self-register and contribute data on various health topics to support research and the development of new treatments. The regi... Read More
