Cure SMA
Non-Profit & Charitable Organizations · Illinois, United States · 11-50 Employees
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Overview
Headquarters
925 Busse Rd, Elk Grove Village, Illinoi...Phone Number
(800) 886-1762Website
www.curesma.orgRevenue
$13.8 MillionIndustry
ZI Rank: 1
Signal Type
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ZI Rank
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About Cure SMA
Cure SMA is dedicated to the treatment and cure of SMA. Since 1984, Cure SMA has grown to be the largest network of individuals, families, clinicians, and research scientists working together to advance SMA research, support the full SMA community, and educate public and professional communities about SMA. The organization has directed and invested in comprehensive research that has shaped the scientific community's understanding of SMA, led to breakthroughs in treatment and care, and provides individuals and families the support they need today.Explore more
Cure SMA Org Chart
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Activity Insights
Cure SMA is experiencing very low activity levels compared to other companies in the Organizations sector.
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Cure SMA is drawing exceptional interest within the Organizations industry, suggesting notable developments or strong market momentum, learn more about Cure SMA.
Cure SMA Tech Stack
A closer look at the technologies used by Cure SMA
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Most Recent Scoops
New Hire
Executive Move
Debora Pellicano has recently joined the organization as Chief Financial Officer.
Executive Moves, New Hire
Person-Based
Person-Based
Person-Based
Cure SMA News & Media
Federal Law Brings Hope to Individuals and Families Living with SMA, Expands Access and Research
WASHINGTON, Feb. 3, 2026 /PRNewswire/ -- Cure SMA today announced that key research and legislative priorities championed by the spinal muscular atrophy (SMA) community have been approved by Congress and signed into law by the President as part of the Consolidated Appropriations Act of...Cure SMA Welcomes Broad FDA Approval of Itvisma™ for Spinal Muscular Atrophy, Reinforces Commitment to Patient Access and Support
SCHAUMBURG, Ill., Nov. 26, 2025 /PRNewswire/ -- Cure SMA, the leading nonprofit organization dedicated to supporting those impacted by spinal muscular atrophy (SMA), welcomes the FDA approval of Itvisma™ (onasemnogene abeparvovec-brve) by Novartis for adults and children 2 years of age...Scholar Rock to Present Comprehensive Update at 2025 Annual Cure SMA Research and Clinical Care Meeting, Including Positive Results from Pivotal Phase 3 SAPPHIRE Trial
CAMBRIDGE, Mass.--(BUSINESS WIRE)--Scholar Rock (NASDAQ: SRRK), a late-stage biopharmaceutical company focused on developing and commercializing apitegromab for patients with spinal muscular atrophy (SMA) and other severe and debilitating neuromuscular diseases, announced today that it will present data from its Phase 3 SAPPHIRE clinical trial (NCT05156320) in an oral presentation at Cure SMA’s Annual SMA Research & Clinical Care Meeting being held June 25-27, 2025, in Anaheim, California.Cytokinetics and Cure SMA Renew Partnership to Advance Education and Awareness of SMA
SOUTH SAN FRANCISCO, Calif. and ELK GROVE VILLAGE, Ill., Aug. 19, 2021 (GLOBE NEWSWIRE) -- Cytokinetics, Incorporated (Nasdaq: CYTK) and Cure SMA today announced the renewal of their partnership to increase education, awareness, public policy and fundraising for spinal muscular atrophy (SMA). Cytokinetics will be a National Gold Sponsor in support of several key Cure SMA initiatives across the United States.
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Frequently Asked Questions Regarding Cure SMA
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Cure SMA is dedicated to the treatment and cure of SMA. Since 1984, Cure SMA has grown to be the largest network of individuals, families, clinicians, and research scientists working together to advance SMA research, support the full SMA community, and educate public and professional communities about SMA. The organization has directed and invested... Read More
