Cure LBSL

Non-Profit & Charitable Organizations · Virginia, United States · 1-10 Employees

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Overview

Headquarters

3520 S Wakefield St, Arlington, Virginia...

Phone Number

(202) 487-4235

Revenue

<$5 Million

Industry

Non-Profit & Charitable Organizations Organizations
ZI Rank: 1
Signal Type
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ZI Rank
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About Cure LBSL

Cure LBSL is dedicated to raising awareness, supporting families, and driving research to find a cure for leukoencephalopathy with brainstem and spinal cord involvement and lactate elevation (LBSL), a rare genetic disease. The organization focuses on uniting LBSL patients, families, medical providers, and researchers globally to advance knowledge and resources related to this condition. It aims to provide vital support to those affected by LBSL through advocacy, patient resources, and community engagement. With a commitment to fundraising, Cure LBSL has raised over $3.5 million for research and successfully hosted international conferences to foster collaboration and awareness.Explore more
Cure LBSL's Social MediaPopular SearchesCure LBSLSIC Code 83,839NAICS Code 81,813Show more

Cure LBSL Org Chart

PhoneEmail
MV
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Executive Director

PhoneEmail
MM
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Co-Founder & Director

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Top Executive

Cure LBSL

<$5M
1-10
Private
-
2013
MV
Morgan VoigtExecutive Director
<$5M
11-50
Private
-
2009
N/A
<$5M
11-50
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2007
PB
Patrick BudaniEvent Coordinator
<$5M
1-10
Private
-
2017
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<$5M
1-10
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-
-
Cyndi Jones, President at Sitosterolemia Foundation
Cyndi JonesPresident
<$5M
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Company Profile Activity

i

Among all Organizations companies

Low Activity

High Activity

Activity Insights

Cure LBSL is experiencing very low activity levels compared to other companies in the Organizations sector.

What does this means?

Cure LBSL is drawing exceptional interest within the Organizations industry, suggesting notable developments or strong market momentum, learn more about Cure LBSL.

Cure LBSL Tech Stack

A closer look at the technologies used by Cure LBSL

Top Non-Profit & Charitable Organizations Companies

Frequently Asked Questions Regarding Cure LBSL

What is Cure LBSL's official website?
Cure LBSL's official website is www.curelbsl.org
What is Cure LBSL's Revenue?
Cure LBSL's revenue is <$5 Million
What is Cure LBSL's SIC code?
Cure LBSL's SIC: 83,839
What is Cure LBSL's NAICS code?
Cure LBSL's NAICS: 81,813
How many employees does Cure LBSL have?
Cure LBSL has 1-10 employees
What industry does Cure LBSL belong to?
Cure LBSL is in the industry of: Non-Profit & Charitable Organizations, Organizations
What is Cure LBSL competition?
Cure LBSL top competitors include: Sitosterolemia Foundation, Hoppy’s Hope To End Huntington's Disease, Mike L Jezdimir Transverse Myelitis Foundation, Lucky Laces
What technology does Cure LBSL use?
Some of the popular technologies that Cure LBSL uses are: WooCommerce, WordPress.org, PHP, Squarespace Online Stores
How do I contact Cure LBSL?
Cure LBSL contact info: Phone number: (202) 487-4235 Website: www.curelbsl.org
What does Cure LBSL do?

Cure LBSL is dedicated to raising awareness, supporting families, and driving research to find a cure for leukoencephalopathy with brainstem and spinal cord involvement and lactate elevation (LBSL), a rare genetic disease. The organization focuses on uniting LBSL patients, families, medical providers, and researchers globally to advance knowledge a... nd resources related to this condition. It aims to provide vital support to those affected by LBSL through advocacy, patient resources, and community engagement. With a commitment to fundraising, Cure LBSL has raised over $3.5 million for research and successfully hosted international conferences to foster collaboration and awareness.Read More

What are Cure LBSL social media links?
Cure LBSL Linkedin page
Is Cure LBSL a public company?
Cure LBSL is private company therefore does not currently have an official ticker symbol
See more information about Cure LBSL

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