Blepharospasm Australia

We also produce a twice-yearly Newsletter which is mailed to those who have no Internet and emailed to those who do. We have been fortunate in obtaining some funding in recent years from pharmaceutical companies. One of our current activities is to create a database of all doctors in Australia who treat Benign Essential Blepharospasm. This will be... particularly useful for our travelling members as well as for enquirers looking for a doctor in their locality. When the website was first established in 2004 it did not take long for people all over Australia to get in touch. We had a registration form so people could join the website and they had the option to allow their email address to be available so that other sufferers could contact them for support and advice. We had registered members from all over Australia. We acted as a referral centre and forwarded enquiries to a contact person in the relevant State. In 2012 Lesley decided to step down from her role as Chairman and became our Member Liaison Officer. We elected a new Chairman. John Yeudall was diagnosed with BEB in 2010. He is a professional company director having served on the boards of numerous public and private companies for the last ten years. Most of his earlier working life was living and working in the Middle East both in the private and public sectors. For ten years he served as Australia's Senior Trade Commissioner to the Middle East including a three year term as Australia's Consul General in the UAE. He lives in Perth, Western Australia and also serves on the Board of RANZCO Eye Foundation. It has become apparent over the last few years that more and more people in our membership demographic now have access to the Internet and obviously this will increase in the future so it was decided to make the website the focus of our primary aim of promoting knowledge and understanding of Benign Essential Blepharospasm in Australia. There are no actual support groups in the other States of Australia.Read More