Alpha-1 Canada

We are always looking for new ways to help and are open to your suggestions. Currently our programs and services are: Toll Free Information Line 1-888-669-4583 Patient Education Days Educational webcasts Facilitation of peer-to-peer program Bilingual print materials for patients, caregivers and family members Bilingual print materials for physician... s and allied healthcare professionals Promotion of wellness and self-management in healthcare programs and services including smoking cessation, nutrition, exercise and other lifestyle changes Promotion of and information on testing, early detection and treatment of Alpha-1 Antitrypsin Deficiency Advocacy for equitable and affordable access for Alpha-1 Antitrypsin augmentation therapy Advocacy for federal government policies addressing orphan drugs, rare diseases, access to treatment, quality healthcare and genetic non-discrimination Provide a range of collaborative services to healthcare professionals including consultative participation in policy forums and referrals for patients to researchers for clinical trial recruitment Investigate, create and implement on-going methods for organizational growth, data collection and healthcare management Board of directorsRead More