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Scleroderma Research Foundation

California, United States · <25 Employees

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Who is Scleroderma Research Foundation

Scleroderma is typically described as a rheumatic disease of the connective tissues. In its systemic form, systemic sclerosis is a chronic, autoimmune disorderaccompanied by varying degrees of fibrosis and widespread vascular damage. Systemic sclerosis can be disfiguring, debilitating and deadly. In the most serious cases, the disease causes severe damage and severe complications for the bodys digestive, respiratory and circulatory systems. Scleroderma is not a single disease, but a set of related disorders involving a similar set of symptoms. This makes a concise definition and diagnosis difficult. All forms of scleroderma do, however, share the basic characteristics of fibrosis (an excessive accumulation of collagen in the bodys tissues) and inflammation. Eighty percent of those afflicted with the disease are women, though scleroderma also strikes men and children across all ages and ethnic boundaries. Unfortunately, the disease typically strikes in the prime of patients lives, when they are 30-50 years old. The cause of scleroderma is unknown. It is not contagious and it is rare for direct family members of patients to manifest the disease. However, there is evidence of a modest genetic predisposition to scleroderma. Some scleroderma cases have been linked to environmental factors such as silica dust, organic solvents, and certain drugs, though the cause for most cases of scleroderma is still not known. Significant progress has been made in managing the symptoms and some of the most serious complication of scleroderma. People with the disease are living longer, fuller lives. Still, no therapies yet exist to halt or reverse the disease process. Patients continue to experience pain, deterioration, and debilitation and many patients die. The Scleroderma Research Foundation is devoting every possible resource to solving the mysteries of scleroderma. A collaborative approach to research is opening doors to therapeutic development and ultimately, a cure. There are two major types of sclerodermalocalized and ...Read More

Headquarters

Headquarters

220 Montgomery St Ste 484, San Francisco, California, 94104, United States
Phone Number

Phone Number

(415) 834-9444
Revenue

Revenue

<$5M
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Scleroderma Research Foundation News & Media

Scleroderma Research Foundation Will Host Its Inaugural Virtual Patient Forum, "Collaborating For A Cure" for Scleroderma Awareness Month

SAN FRANCISCO, May 12, 2022 /PRNewswire/ -- The Scleroderma Research Foundation (SRF) will host its inaugural Virtual Patient Forum, Collaborating for a Cure, on Wednesday, June 1, 2022, to kick-off Scleroderma Awareness Month. Designed for those living with scleroderma and the people who...

Scleroderma Research Foundation Announces $1.5M Matching Gift in Honor of Bob Saget

SAN FRANCISCO, Jan. 13, 2022 /PRNewswire/ -- The Scleroderma Research Foundation (SRF)—the country's first and leading nonprofit investor in medical research into scleroderma—announced a $1.5 million dollar matching gift, in the form of a grant to match every donation made in honor of the...

Scleroderma Research Foundation, Bob Saget, and Susan Feniger Announce Lineup for Cool Comedy • Hot Cuisine Streaming Live on October 17, 2021

SAN FRANCISCO, Oct. 12, 2021 /PRNewswire/ -- The Scleroderma Research Foundation (SRF)—the country's first and leading nonprofit investor in medical research into scleroderma—announced the lineup for Cool Comedy • Hot Cuisine, live on Sunday, October 17, 2021 at 5 p.m. PDT / 8 p.m. EDT....
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