Palm of Hope

Who is Palm of Hope

Palm of Hope is a small group of volunteers united by one goal - supporting kids with life-threatening or incurable diseases in Russia, Belarus, Uk raine, and Kazakhstan. We fundraise to assist children with essential nutrition supplies and critical medical equipment. Any donation will forward us in the daily battle giving children a hope for tomorrow. We are here because no matter how little time the child may have left, theres still much we can do to help. We are here because we truly believe that despite diagnosis, with help of advanced equipment and medical supplies, these children can live comfortable life at home with their families. We are here because the countries that we cover are not fully developed to provide sufficient medical and social care. Many of our patients simply cannot survive without our support. By supporting our foundation you will help us to purchase and ship equipment and supplies in timely manner. Most of our children have rare genetic diseases like Spinal Muscular Atrophy (SMA), Duchenne muscular dystrophy and others. These uncommon neuromuscular pathologies cause damage to movement functions, progressive muscle wasting, cardiac function disorders and labored breathing functions. How do such children live? It all starts from the legs. The disease gradually moves up through the whole body. Then respiratory muscles stop working and the child is eventually supported by ALV (artificial lung ventilation). If the parents can afford highly expensive "house/portable" ALV, then it all ends with cardiac arrest at home but at least in the loving atmosphere. Alternatively - in an emergency room, sometimes all alone and full of fear. Without everyday massage of contractures the body becomes stiff. Any wind, rain and infection pose a lethal risk to a child. Hence, further complex medical materials are required throughout illness progression (such as special nutrition (expensive formula only available from foreign suppliers), special mattress/pillows to prevent bedsores, catheters, pressure ...Read more

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