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Debra Brasil

Non-Profit & Charitable Organizations · Brazil · <25 Employees

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About

Headquarters

65 Rua Carl Dettmer, Blumenau, Santa Catarina, ...

Phone Number

+55 4732376243

Revenue

<$5 Million

Industry

Charitable Organizations & Foundations Organizations

Recent News & Media

No recent news or media

Who is Debra Brasil

The mission of DEBRA Brasil is to share the knowledge of Epidermolysis Bullosa (EB), in order to help people with EB to have quality of life and ac cess to appropriate medical treatments. We also promote EB awareness and the use of DEBRA International CPG – Clinical Practice Guidelines with health professionals and the general public. WHAT IS DEBRA INTERNATIONAL? The first DEBRA was founded in 1978 in the United Kingdom by Phyllis, mother of Debra who was born with Dystrophic EB, as a support group for parents and caregivers. Currently there are almost 50 countries that are part of the world’s leading EB patient advocacy and support network. Although DEBRA Brazil is an independent organization and does not receive funding through DEBRA International, we have the support with information and expertise of the most important EB professionals in the world, as well as the support and exchange of experiences with local DEBRAs that are often created and has the direct participation of parents and people with EB. Both DEBRA International and DEBRA Brazil had people with EB as a president NATIONAL REGISTRATION We have an EB national registry that we started in 2014, where more than 865 people have been registered, with 105 deaths since then. This registry helps to direct public policies to be created in places where they have a higher concentration of people with EB, in addition to facilitate research, as many times those treatments are targeted to a specific type of EB. NEWBORN CARE - KIT BORBOLETINHA Our newborn KIT contains emergency products for the treatment of wounds, and information to the medical staff as well as the parents. In addition to the emergency KIT, DEBRA Brazil also has a team of doctors and nurses (volunteers) that gives the necessary support to the medical team treating the newborn. Wound care products are donated by companies and provided until the baby completes 3 months.Read more

Debra Brasil's Social MediaPopular SearchesDEBRA BrasilAssociacao Mineira Dos Parentes, Amigos E Portador...SIC Code 87,873NAICS Code 54,541Show more

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Frequently Asked Questions regarding Debra Brasil

Where is Debra Brasil located?
Debra Brasil's headquarters are located at 65 Rua Carl Dettmer, Blumenau, Santa Catarina, 89000-000, Brazil
What is Debra Brasil's phone number?
Debra Brasil's phone number is +55 4732376243
What is Debra Brasil's official website?
Debra Brasil's official website is www.debrabrasil.com.br
What is Debra Brasil's Revenue?
Debra Brasil's revenue is <$5 Million
What is Debra Brasil's SIC code?
Debra Brasil's SIC: 87,873
What is Debra Brasil's NAICS code?
Debra Brasil's NAICS: 54,541
How many employees does Debra Brasil have?
Debra Brasil has <25 employees
What industry does Debra Brasil belong to?
Debra Brasil is in the industry of: Charitable Organizations & Foundations, Organizations
What technology does Debra Brasil use?
Some of the popular technologies that Debra Brasil uses are: WordPress.org, PHP, Bitly, YouTube
How do I contact Debra Brasil?
Debra Brasil contact info: Phone number: +55 4732376243 Website: www.debrabrasil.com.br
What does Debra Brasil do?

The mission of DEBRA Brasil is to share the knowledge of Epidermolysis Bullosa (EB), in order to help people with EB to have quality of life and access to appropriate medical treatments. We also promote EB awareness and the use of DEBRA International CPG – Clinical Practice Guidelines with health professionals and the general public. WHAT IS DEBRA... INTERNATIONAL? The first DEBRA was founded in 1978 in the United Kingdom by Phyllis, mother of Debra who was born with Dystrophic EB, as a support group for parents and caregivers. Currently there are almost 50 countries that are part of the world’s leading EB patient advocacy and support network. Although DEBRA Brazil is an independent organization and does not receive funding through DEBRA International, we have the support with information and expertise of the most important EB professionals in the world, as well as the support and exchange of experiences with local DEBRAs that are often created and has the direct participation of parents and people with EB. Both DEBRA International and DEBRA Brazil had people with EB as a president NATIONAL REGISTRATION We have an EB national registry that we started in 2014, where more than 865 people have been registered, with 105 deaths since then. This registry helps to direct public policies to be created in places where they have a higher concentration of people with EB, in addition to facilitate research, as many times those treatments are targeted to a specific type of EB. NEWBORN CARE - KIT BORBOLETINHA Our newborn KIT contains emergency products for the treatment of wounds, and information to the medical staff as well as the parents. In addition to the emergency KIT, DEBRA Brazil also has a team of doctors and nurses (volunteers) that gives the necessary support to the medical team treating the newborn. Wound care products are donated by companies and provided until the baby completes 3 months.Read More

What are Debra Brasil social media links?
Debra Brasil Linkedin page Debra Brasil Facebook page
Is Debra Brasil a public company?
Debra Brasil is private company therefore does not currently have an official ticker symbol
See more information about Debra Brasil

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