Sickle Cell Thalassemia Patients Network

Location:

1139 St. Johns PlaceBrooklynNew York11213United States View Map

Phone:

(347) 533-8485

Fax:

(718) 789-5767
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Description:

Sickle Cell Thalassemia Patients Network (SCTPN) was founded in 1989 at Brooklyn Jewish Hospital (now known as Interfaith Medical Center) located in Brooklyn, NY, as an adult and parent support group for individuals with inherited blood disorders. SCTPN was incorporated in 1993 as a volunteer, not-for-profit organization by adults living with sickle cell disease, thalassemia and other hemoglobin disorders to serve the larger community in an effort to advocate for the under represented. SCTPN, is a 501 (c)(3) tax-exempt organization, which provides education, advocacy, referral services, and support for individuals and families living with sickle cell disease (SCD), thalassemia (Cooley's Anemia), and other inherited blood disorders. Public education programs and webinars are provided to help increase awareness of hemoglobin disorders. These programs also provide non-medical information that empowers individuals to take control of their health and thus enjoy a better quality of life. Advocacy is provided for families as they migrate the sometimes complicated healthcare system. Referrals for related services are also provided.

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