Health News Article -
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Published on: 4/4/2008
Last Visited: 10/23/2008
Anne Willis, 25, is NCCS' director of survivorship programs and a 10-year survivor of Ewing's sarcoma, a rare malignancy that attacks the bone or soft tissue.
She told conference attendees that when she first knew she would be undergoing chemotherapy, she "was too scared to ask the nurses what to expect.
I never had any conversations with anybody, so I was absolutely terrified."
But, like many of those polled in the survey, Willis said she soon realized that her fears of chemotherapy were exaggerated.
Her attitudes toward her health-care team changed, too.
"I became much more of an active participant in my care," Willis said.
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"I know personally that having that piece of paper would have encouraged me to open up that dialogue with my health-care team," Willis said.
Everyone agreed that, if anything, cancer care has gotten both easier and more effective in the decade or more since Willis and Ellerbee received their care.
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"Things are dramatically different now in the 10 or 12 years since [Willis'] treatment, in terms of what we can do for patients to improve their care," said oncologist Dr. Howard Burris, who is chief medical officer and director of drug development at the Sarah Cannon Research Institute in Nashville, Tenn. "It's really made cancer care an outpatient business."
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Source: SOURCES: Linda Ellerbee, broadcast journalist; Anne Willis, director of survivorship programs, National Coalition for Cancer Survivorship, Silver Spring, Md.; Howard Burris, M.D., chief medical officer and director, drug development, the Sarah Cannon Research Institute, Nashville, Tenn; Surviving with Confidence survey