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    www.childrenscause.org/library/profile_willis_anne.shtm - [Cached Version]
    Published on: 4/4/2007    Last Visited: 4/4/2007  

    Anne Willis

    Anne Willis was 14 when she noticed a lump on the back of her head and neck.A few weeks later, having just completed her freshman year in high school, she was diagnosed with Extraosseous Ewing's Sarcoma.In addition to going through 14 months of chemotherapy, 6 weeks of radiation, several surgeries, Anne and her family made the difficult decision to switch oncology teams partway through her treatment.The move led her to receive the best care possible for her situation.Anne shares her experience as a teen with cancer.
    ...
    Anne is currently on staff at the National Coalition for Cancer Survivorship using her experience to help others affected by cancer.

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    myecare.sharp.com/news/index.cfm?id=10313 - [Cached Version]
    Last Visited: 7/9/2008  

    Anne Willis, 25, is NCCS's director of survivorship programs and a 10-year survivor of Ewing's sarcoma, a rare malignancy that attacks the bone or soft tissue.

    She says that when she first knew she would be undergoing chemotherapy, she "was too scared to ask the nurses what to expect.I never had any conversations with anybody, so I was absolutely terrified."

    But, like many of those polled in the survey, Willis says she soon realized that her fears of chemotherapy were exaggerated.Her attitudes toward her health care team changed, too.

    "I became much more of an active participant in my care," says Willis.
    ...
    "I know personally that having that piece of paper would have encouraged me to open up that dialogue with my health care team," says Willis.

    Everyone agrees that, if anything, cancer care has gotten both easier and more effective in the decade or more since Willis and Ellerbee received their care.
    ...
    "Things are dramatically different now in the 10 or 12 years since [Willis'] treatment, in terms of what we can do for patients to improve their care," says oncologist Dr. Howard Burris, at the Sarah Cannon Research Institute in Nashville, Tenn. "It's really made cancer care an outpatient business."

  • View Online Source
    www.mpnnow.com/towns/hilton/rss - [Cached Version]
    Last Visited: 5/17/2008  

    His wife, Ann, encouraged him to learn about the disease and supported him as he took it on.

    "Only because of her I'm here today," he said.
    ...
    Anne Willis, director of survivorship programs for the National Coalition for Cancer Survivorship, said Hiatt's story is a common one among cancer patients who are considering chemotherapy.

    "There's a lot of misinformation out there," Willis said.

  • View Online Source
    www.argusleader.com/apps/pbcs.dll/article?AID=/20080414 - [Cached Version]
    Published on: 4/8/2008    Last Visited: 4/15/2008  

    Anne Willis, 25, is NCCS' director of survivorship programs and a 10-year survivor of Ewing's sarcoma, a rare malignancy that attacks the bone or soft tissue.She told conference attendees that when she first knew she would be undergoing chemotherapy, she "was too scared to ask the nurses what to expect.I never had any conversations with anybody, so I was absolutely terrified."

    But, like many of those polled in the survey, Willis said she soon realized that her fears of chemotherapy were exaggerated.Her attitudes toward her health-care team changed, too."I became much more of an active participant in my care," Willis said.
    ...
    "I know personally that having that piece of paper would have encouraged me to open up that dialogue with my health-care team," Willis said.

    Everyone agreed that, if anything, cancer care has gotten both easier and more effective in the decade or more since Willis and Ellerbee received their care.
    ...
    "Things are dramatically different now in the 10 or 12 years since (Willis') treatment, in terms of what we can do for patients to improve their care," said oncologist Dr. Howard Burris, who is chief medical officer and director of drug development at the Sarah Cannon Research Institute in Nashville, Tenn. "It's really made cancer care an outpatient business."

  • View Online Source
    dev.centegra.photobooks.com/Newsletters.asp?PageID=P094 - [Cached Version]
    Last Visited: 10/22/2008  

    Anne Willis, 25, is NCCS' director of survivorship programs and a 10-year survivor of Ewing's sarcoma, a rare malignancy that attacks the bone or soft tissue.

    She says that when she first knew she would be undergoing chemotherapy, she "was too scared to ask the nurses what to expect.I never had any conversations with anybody, so I was absolutely terrified."

    But, like many of those polled in the survey, Willis says she soon realized that her fears of chemotherapy were exaggerated.Her attitudes toward her health-care team changed, too.

    "I became much more of an active participant in my care," says Willis.
    ...
    "I know personally that having that piece of paper would have encouraged me to open up that dialogue with my health-care team," says Willis.

    Everyone agrees that, if anything, cancer care has gotten both easier and more effective in the decade or more since Willis and Ellerbee received their care.
    ...
    "Things are dramatically different now in the 10 or 12 years since [Willis'] treatment, in terms of what we can do for patients to improve their care," says oncologist Dr. Howard Burris, at the Sarah Cannon Research Institute in Nashville, Tenn. "It's really made cancer care an outpatient business."

  • View Online Source
    GCF: About the Gynecologic Cancer Foundation - [Cached Version]
    Last Visited: 9/18/2008  

    Ann Willis1010 Wayne Ave., #779Silver Spring, MD 20910301.650.9127awillis@canceradvocacy.org

  • View Online Source
    Health News Article - [Cached Version]
    Published on: 4/4/2008    Last Visited: 10/23/2008  

    Anne Willis, 25, is NCCS' director of survivorship programs and a 10-year survivor of Ewing's sarcoma, a rare malignancy that attacks the bone or soft tissue. She told conference attendees that when she first knew she would be undergoing chemotherapy, she "was too scared to ask the nurses what to expect. I never had any conversations with anybody, so I was absolutely terrified."

    But, like many of those polled in the survey, Willis said she soon realized that her fears of chemotherapy were exaggerated. Her attitudes toward her health-care team changed, too. "I became much more of an active participant in my care," Willis said.
    ...
    "I know personally that having that piece of paper would have encouraged me to open up that dialogue with my health-care team," Willis said.

    Everyone agreed that, if anything, cancer care has gotten both easier and more effective in the decade or more since Willis and Ellerbee received their care.
    ...
    "Things are dramatically different now in the 10 or 12 years since [Willis'] treatment, in terms of what we can do for patients to improve their care," said oncologist Dr. Howard Burris, who is chief medical officer and director of drug development at the Sarah Cannon Research Institute in Nashville, Tenn. "It's really made cancer care an outpatient business."
    ...
    Source: SOURCES: Linda Ellerbee, broadcast journalist; Anne Willis, director of survivorship programs, National Coalition for Cancer Survivorship, Silver Spring, Md.; Howard Burris, M.D., chief medical officer and director, drug development, the Sarah Cannon Research Institute, Nashville, Tenn; Surviving with Confidence survey

  • View Online Source
    Most Cancer Survivors Say Chemo Fears Unfounded - [Cached Version]
    Published on: 4/4/2008    Last Visited: 6/17/2008  

    Anne Willis, 25, is NCCS' director of survivorship programs and a 10-year survivor of Ewing's sarcoma, a rare malignancy that attacks the bone or soft tissue.She told conference attendees that when she first knew she would be undergoing chemotherapy, she "was too scared to ask the nurses what to expect.I never had any conversations with anybody, so I was absolutely terrified."

    But, like many of those polled in the survey, Willis said she soon realized that her fears of chemotherapy were exaggerated.Her attitudes toward her health-care team changed, too."I became much more of an active participant in my care," Willis said.
    ...
    "I know personally that having that piece of paper would have encouraged me to open up that dialogue with my health-care team," Willis said.

    Everyone agreed that, if anything, cancer care has gotten both easier and more effective in the decade or more since Willis and Ellerbee received their care.
    ...
    "Things are dramatically different now in the 10 or 12 years since [Willis'] treatment, in terms of what we can do for patients to improve their care," said oncologist Dr. Howard Burris, who is chief medical officer and director of drug development at the Sarah Cannon Research Institute in Nashville, Tenn. "It's really made cancer care an outpatient business."
    ...
    SOURCES: Linda Ellerbee, broadcast journalist; Anne Willis, director of survivorship programs, National Coalition for Cancer Survivorship, Silver Spring, Md.; Howard Burris, M.D., chief medical officer and director, drug development, the Sarah Cannon Research Institute, Nashville, Tenn; Surviving with Confidence survey

  • View Online Source
    Most Cancer Survivors Say Chemo Fears Unfounded - [Cached Version]
    Published on: 8/4/2004    Last Visited: 4/28/2008  

    Anne Willis, 25, is NCCS' director of survivorship programs and a 10-year survivor of Ewing's sarcoma, a rare malignancy that attacks the bone or soft tissue.She told conference attendees that when she first knew she would be undergoing chemotherapy, she "was too scared to ask the nurses what to expect.I never had any conversations with anybody, so I was absolutely terrified."

    But, like many of those polled in the survey, Willis said she soon realized that her fears of chemotherapy were exaggerated.Her attitudes toward her health-care team changed, too."I became much more of an active participant in my care," Willis said.
    ...
    "I know personally that having that piece of paper would have encouraged me to open up that dialogue with my health-care team," Willis said.

    Everyone agreed that, if anything, cancer care has gotten both easier and more effective in the decade or more since Willis and Ellerbee received their care.
    ...
    "Things are dramatically different now in the 10 or 12 years since [Willis'] treatment, in terms of what we can do for patients to improve their care," said oncologist Dr. Howard Burris, who is chief medical officer and director of drug development at the Sarah Cannon Research Institute in Nashville, Tenn. "It's really made cancer care an outpatient business."
    ...
    SOURCES: Linda Ellerbee, broadcast journalist; Anne Willis, director of survivorship programs, National Coalition for Cancer Survivorship, Silver Spring, Md.; Howard Burris, M.D., chief medical officer and director, drug development, the Sarah Cannon Research Institute, Nashville, Tenn; Surviving with Confidence survey

  • View Online Source
    NCCS 10/6: Cathy Bonner talks to Woman's Day Editor... - [Cached Version]
    Last Visited: 11/16/2008  

    From left to right: Cathy Bonner, NCCS President & CEO; U.S. Olympic gymnast Shawn Johnson; Anne Willis, Director of Survivorship Programs; Lisa Auslander, Director of Development

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