Dr. Adele Schneider

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  www.hilleljuc.org/newsletter/milah/2006.10.22.html - [Cached Version]
  Published on: 10/22/2006    Last Visited: 12/14/2007  

  In order to learn more about these diseases and ask any questions about the screening, come to this info session with Dr. Adele Schneider of Albert Einstein Medical Center, 6:30pm @ The Hillel JUC.For more info contact Shoshana or Amy.

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  gaucherdisease.org/audio7.php - [Cached Version]
  Published on: 5/5/2007    Last Visited: 11/22/2007  

  Adele Schneider / Zev Brenner
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  Screening and Testing For Jewish Genetic Diseases - Dr. Adele Schneider, Director, Clinical Genetics, Albert Einstein Medical Center, Philadelphia, PA - Zev Brenner Radio Interview on 5.5.07

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  www.southfloridahospitalnews.com/archives/default.asp?p - [Cached Version]
  Published on: 3/1/2008    Last Visited: 8/23/2008  

  Dr. Adele Schneider, Director of Clinical Genetics at Albert Einstein Healthcare Network and advisor for the Victor Center, focuses on community screenings on college campuses, and large scale collaborations such as the recent screening held at the United Jewish Communities (UJC) annual convention in Nashville.
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  For more information about the Victor Programs, contact Dr. Deborah Barbouth at the Victor Center, UM at (786) 897-9587 or Dr. Adele Schneider at Victor Center, AEHN at schneida@einstein.edu.

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  www.thejewishweek.com/viewArticle/c225_a9422/Special_Se - [Cached Version]
  Published on: 5/14/2008    Last Visited: 8/14/2008  

  The screenings are always free of charge and funded by donors, said Dr. Adele Schneider, the center's director, who added that similar testing by a commercial lab could run as high as $3,000.Schneider identified only two other organizations in the country that are doing the same type of work the Victor Center does — namely, organizing regular screenings, raising funds for the events and providing the tests at either no cost or a reduced rate.
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  Schneider, for instance, said the reason her center organizes free screenings is because the record of health-insurance companies in covering those tests is spotty.The companies cover carrier screenings if the couple is having a baby or, perhaps, seriously considering the possibility, she said, but very rarely do they cover the test if a pregnancy is not involved.The economics of campus testing is even more complicated, Schneider said, noting that students are covered by their parents' health insurance or by rather basic, college-offered plans.

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  www.hillel.org/TemplatesHillel/Templates/news.aspx?NRMO - [Cached Version]
  Published on: 3/4/2008    Last Visited: 3/4/2008  

  Dr. Adele Schneider, clinical director of genetics at the Victor Center says that promoting awareness early about Jewish genetic diseases is the first step toward eradicating them.She's worked with many Hillels to sponsor genetic counseling sessions for Jewish students on campus.

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  www.gaucherdisease.org/news_events.html - [Cached Version]
  Published on: 5/3/2006    Last Visited: 3/11/2007  

  Dr. Adele Schneider, left, of the Albert Einstein Medical Center in Philadelphia, draws blood from University of Pittsburgh junior Rebecca Wassell during a screening held Monday at the Hillel Jewish University Center in Oakland to test for such diseases.
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  The Victor Center has held similar events at the University of Pennsylvania and Tufts University and is working to hold screenings at other colleges, said Dr. Adele Schneider, director of clinical genetics at the medical center.
  
  Many Jewish people are unaware the tests are available, Dr. Schneider said.
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  The college years are a particularly good time for young Jewish people to find out if they are carriers, Dr. Schneider said, noting that most people in that age group are neither engaged nor married.
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  Among orthodox Jews, testing has been used by matchmakers to keep carriers of the same disease from marrying, Dr. Schneider said.
  
  But couples who carry the same disease have other options.Besides adoption, women can utilize a type of in vitro fertilization that allows the screening out of unhealthy embryos, Dr. Schneider said.
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  "This is not just about sticking your arm out," says Dr. Adele Schneider, director of clinical genetics at the Albert Einstein Medical Center in Philadelphia and a board member of the consortium.
  
  Schneider, who also heads the screening program at Einstein's Victor Center for Jewish Genetic Diseases, says that while many people still think the diseases have been eradicated, "we are picking up carriers in every four to five people we screen."

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  www.pjvoice.com/v22/22800parenting.aspx - [Cached Version]
  Published on: 10/7/2008    Last Visited: 12/1/2007  

  -- Adele Schneider, M.D.
  
  A parent's worst nightmare: hearing from a doctor that your child will not live past age five.
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  Adele Schneider, MD, Director of the Victor Center and Johannah Lebow, the outreach coordinator for the Victor Center worked with Shoshanna Rosen, a senior at Pitt and their Hillel staff to organize the screening.

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  www.gaucherdisease.org/pastnews.html - [Cached Version]
  Published on: 10/20/2005    Last Visited: 3/11/2007  

  The booth will be manned at all times by representatives from the individual organizations, along with Dr. Adele Schneider of the Victor Center for Jewish Genetic Diseases at Albert Einstein Medical Center in Philadelphia and genetic counselors from Baylor College of Medicine.Handouts at the booth will include the Jewish Genetic Disease Consortium's brochure with disease descriptions and website links to the individual organizations; the National Society of Genetic Counselors index card with contact information on counselors throughout the country; and for those interested in a particular disease, individual organizations' brochures will be provided.
  
  Finally, rabbis entering the booth will fill out a "quick questionnaire" that has been developed to provide the Consortium with insights into how it can best help rabbis to educate young couples and congregants.
  
  In addition to educating the hundreds that go by the booth, Dr. Adele Schneider has been invited to speak to the rabbis at a "Common Grounds Luncheon."The format of this special seminar allows for a free flowing, give and take discussion.Dr. Schneider's presentation titled "The Power to Prevent Tragedy: Rabbinic Responsibility in Pre-marital Counseling," will cover the following topics: What are the diseases?How are they inherited?What is involved in the screening process?And, what is currently being done to educate the Jewish community?
  
  The seminar provided by Dr. Schneider is designed to provide knowledge so that those attending will be able to: identify the Ashkenazi Jewish Genetic diseases and their salient features; understand autosomal recessive inheritance and be able to explain it to the couples that they are counseling; understand the implications of carrier testing in the community; and recognize how the information about carrier status can affect reproductive decisions.
  
  The Consortium has also convinced the rabbis who are developing the Stem Cell Workshop to include a geneticist on their panel discussion who will segue between stem cell research and Jewish Genetic Diseases.
  
  The Consortium's plan is to leave Houston having made an indelible impression upon rabbis who will, having been more fully educated, go back to their communities and spread the message of the need for carrier testing.
  
  Dr. Schneider is available for interviews, as are several members of the Houston Jewish community who have been personally affected by Jewish genetic diseases.

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  gaucherdisease.org/audio6.php - [Cached Version]
  Published on: 4/15/2007    Last Visited: 11/22/2007  

  Adele Schneider on Shalom USANational Gaucher Foundation
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  Screening and Testing For Jewish Genetic Diseases - Dr. Adele Schneider, Director, Clinical Genetics, Albert Einstein Medical Center, Philadelphia, PA - Shalom USA Radio Interview on 4.15.07

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  www.phillyhillel.org/event/2008/03/14/list/all/all - [Cached Version]
  Published on: 1/1/2008    Last Visited: 3/14/2008  

  Adele Schneider, MD, Director of Clinical Genetics, Albert Einstein Medical Center

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