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This profile was last updated on 8/10/13  and contains information from public web pages.

Advocate

Phone: (312) ***-****  HQ Phone
Local Address:  Buffalo , Missouri , United States
Alzheimer's Association
225 North Michigan Avenue 17Th Floor
Chicago , Illinois 60601
United States

Company Description: The Alzheimer's Association is the world's leading voluntary health organization in Alzheimer's disease care, support and research. Our mission is to eliminate...   more
Background

Employment History

Board Memberships and Affiliations

  • Secretary
    DASNI
Web References
Tracy Mobley, a 42-year-old ...
www.christienicholson.com [cached]
Tracy Mobley, a 42-year-old nurse technician from Buffalo, Mo., knew something wasn't right when she looked out her window one morning to see a strange animal in her yard. She asked her son to come and take a look. "But, Mom, you know who that is! That's Daisy," he said with a nervous laugh. "Our dog."
Eventually she received a diagnosis of early-onset Alzheimer's, a rare form of the disease that can strike people as early as their mid-30s.
People suffering from the initial stages of Alzheimer's face problems in dealing with family and friends.
Mobley said her mother refused to believe she had Alzheimer's. Her mother would even tell Mobley's 12-year-old son, Austin, that Mobley was making it up. "He'd come home, crying and confused," she said. "My mother's denial caused so much stress I had to stop speaking with her."
It's a common problem because early dementia isn't easily recognizable. It doesn't change one's physical appearance the way cancer or osteoporosis might, Mobley said.
...
Mobley wrote "Young Hope" in 2004, chronicling her own struggle.
Tracy Mobley, a 42-year-old ...
www.christienicholson.com [cached]
Tracy Mobley, a 42-year-old nurse technician from Buffalo, Mo., knew something wasn't right when she looked out her window one morning to see a strange animal in her yard.She asked her son to come and take a look."But, Mom, you know who that is!That's Daisy," he said with a nervous laugh."Our dog."
Eventually she received a diagnosis of early-onset Alzheimer's, a rare form of the disease that can strike people as early as their mid-30s.
People suffering from the initial stages of Alzheimer's face problems in dealing with family and friends.
Mobley said her mother refused to believe she had Alzheimer's.Her mother would even tell Mobley's 12-year-old son, Austin, that Mobley was making it up."He'd come home, crying and confused," she said."My mother's denial caused so much stress I had to stop speaking with her."
It's a common problem because early dementia isn't easily recognizable.It doesn't change one's physical appearance the way cancer or osteoporosis might, Mobley said.
...
Mobley wrote "Young Hope" in 2004, chronicling her own struggle.
Alzheimers Association - Southwest Missouri Chapter
www.alz-swmo.org [cached]
Working in the medical field for most of her adult life gave Tracy Mobley a way she could reach out and help people.Now, despite her diagnosis of Alzheimer's, she's still passionate about helping people and has already published one book with another "in the works."
The Southwest Missouri Chapter is very proud to feature the following article about Tracy , which was published in January by the Marshfield Mail.Tracy will also appear on KOLR TV in Springfield .
...
This was one of many wake-up calls for Elkland resident Tracy Mobley, who was diagnosed with early onset Alzheimer's disease at age 38.
Mobley, now 40, worked part-time with her in-laws, who owned Penny Pincher Grocery, Marshfield . She also worked part-time at Cox Medical Center-South as a nurse technician in the ICU-PACU.After being on the job there for seven years, she began getting lost in the hallways and forgetting what supplies she needed to bring back to her department.
Prior to working for Cox, Mobley had worked in neurotrauma at St. Francis Hospital in Tulsa , Okla. , and she had 18 years of experience in the medical field before her doctor told her she shouldn't work anymore.
Although saddened by the loss of her livelihood, Mobley found another way to help people.
She had been keeping a journal of her daily experiences during the two years it took to reach an official diagnosis, and at the encouragement of the Southwest Missouri Chapter of the Alzheimer's Association and Judee Stewart, she decided to turn it into a book.Last July, "Young Hope," was published.
Journal offers 'Hope'
"It helped me to deal with what was going on with me, because I was able to write down my thoughts and feelings and kind of come to terms with it and accept things," she said of the journal.Mobley hopes her candid testimony in the book will help others with the disease to cope with it and caregivers or doctors to understand what they go through.
The book was intended to pass along two messages.The first was that Alzheimer's is not an "old-person's disease."
"It can happen at any age to anybody," said Mobley, who is also the secretary of the board for DASNI, or Dementia Advocacy and Support Network International.She said the average age for those in the organization is 50, but some are in their 40s.Plus, she has met other non-members who are in their 30s.The youngest Alzheimer's patient is in his early 20s.
Dealing with denial
The second message is one of helping families to get past denial.Mobley said her own mother is still in denial about her disease, despite her efforts, but it has been beneficial in other cases.
"There's one chapter that's specifically titled 'Family in Denial,' and that's what it's aimed at," she said."I've had several responses from other people who said, 'That chapter really helped my family out a lot, helped them to see.'
Mobley is currently waiting on the illustration of her second book, "I Remember When," a children's book about Alzheimer's aimed at ages 8 to 12.It was written with the help of Mobley's 10-year-old son, Austin.She hopes it will help children understand their parents or grandparents with Alzheimer's, explain their actions, help children to accept it, and give some tips on how to help.
...
In addition to getting lost at work and on the road, Mobley began forgetting conversations and agreements with her husband, Allen.She didn't recognize their dog one day, and there were a few times she didn't know her husband or son.
The first doctors she saw decided she had pre-menopausal symptoms, and prescribed anti-depressants and hormones.She even underwent a hysterectomy, but things did not improve overall.
When she suggested she might have Alzheimer's to one doctor, she was told that if she were 60 or 65, that would be her diagnosis, but she wasn't, so it couldn't be that.
She began having seizures while taking four different medications, and it was thought she might have epilepsy.So she eventually went to the Mayo Clinic in Rochester , Minn. , where tests pointed to the medicines causing her seizures.However, she came home with no official diagnosis for her memory loss, except the possibility of Alzheimer's written in her medical records.
...
Like doctors, Mobley went through a few dementia medications to find the right fit as well.She turned out to be allergic to the first two she tried.So her doctor at that time took her off the medication altogether, and she began to regress and wander - setting out on foot from her in-laws' store on East Jackson Street in Marshfield toward her home in Elkland one day, and ending up near the Sonic at West Washington and Spur Drive.
...
Then we found out it wasn't far from being approved here," said Mobley." ... With the medicine, I'm back to staying at home while he's at work."
Freedom comes at the price of $500 per month, without insurance, for her pills, and it still doesn't buy her total freedom.Mobley gets periodic phone calls from her in-laws and husband to check on her at home.
All medications are labeled and locked in a tool box, since she mistakenly took her husband's medicines, plus her own, one night and ended up in the emergency room.Cleaning supplies, too, are locked away in a shed, after she accidentally mixed Tidy Bowl and bleach while cleaning her bathroom, releasing chlorine gas.She is also not allowed to cook on the stove, and she rarely drives anymore - never without someone else in the car.
"At first, it was really offensive," said Mobley."I felt like the things they were doing were very demeaning to me, and there was a lot of hostility there for a while.Then, I soon realized it was all for my best interest, and they weren't doing it to be mean.They had to do it to protect me."
Mobley added that the dangerous situations she has been in don't scare her for the sake of her own well-being, but she really cares about her son's safety.
Allen said it is hard for him to see his wife go through all of this, and he has learned patience over the years.
"When you go from your spouse being totally functional and sharp and adept, then you watch this, and it's someone who's not that every day," he said.
...
Through everything, Mobley said being an advocate for the Alzheimer's chapter and for DASNI helps her to cope.
"We think that's maybe the purpose of me getting this at such a young age," said Mobley."I'm in the early stages, and there are a lot of people out there who don't understand what it is we go through, and I'm able to speak for those who can't speak and kind of explain it to their caretakers, so they kind of know what they're going through and can help them out a little more.
"I answer a lot of e-mails daily through the DASNI organization, and people that I've met just through my book will somehow track me down and contact me when they have questions," she said."I probably spend two or three hours a day on the computer, just answering e-mails or talking to somebody newly diagnosed who doesn't know where to go from here.
"There are times I get depressed and I want to give up and quit my medicines, and I'm tired of the mess," she added." ...
Ageless Design, Alzheimers Daily News Service
www.agelessdesign.com [cached]
(Source: KOLR 10 News) - Tracy Mobley was only 36 years old when she started having difficulty remembering conversations, directions and familiar faces.She wants people to know that Alzheimer`s isn`t just a disease for old people.
As a nurse technician, Tracy would get lost in the hospital."I would go to another department to pick up supplies and I`d have to call back to my unit because I`d forgotten what I was there for."
Tracy, her husband and her doctors considered stress, depression, and even hormonal changes as the cause for her problems."I couldn`t even remember how to use the microwave - they`d have to show me what buttons to push.I didn`t remember what toothbrush was mine.I was unable to drive."
"I got up one morning to get ready for work, opened the window and didn`t recognize my dog," Tracy said.
Finally a visit to The Mayo Clinic brought a diagnosis of dementia, and a local doctor confirmed Tracy had early onset Alzheimer`s disease.
Tracy has written a book called "Young Hope" for Alzheimer`s victims and families, and her young son is helping her write a children`s book on the subject.
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