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This profile was last updated on 12/20/14  and contains information from public web pages and contributions from the ZoomInfo community.

Advocacy

Phone: (212) ***-****  HQ Phone
Email: m***@***.org
Local Address:  San Diego , California , United States
Huntington's Disease Society of America
505 Eight Avenue, Suite 902
New York , New York 10018
United States

Company Description: The Huntington's Disease Society of America (HDSA) is a national non-profit voluntary health agency dedicated to finding a cure for Huntington's Disease. They...   more
Background

Employment History

Board Memberships and Affiliations

21 Total References
Web References
Let’s fix the law to help HD families
www.hdsasandiego.org [cached]
Misty Oto, a board member for the San Diego chapter of HDSA and a leading advocate of the bill, witnessed the travails of her HD-stricken mother, brother, and aunt as they struggled to obtain benefits.
Her brother’s symptoms had caused him to miss SSA appointments, misplace paperwork, and write illegibly on his application for benefits, according to Misty. Finally, with the help of Reps.
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Below, you can watch the complete interview I conducted with Misty on April 8.
Gene Veritas interviews Huntington's disease advocate Misty Oto on HD Parity Act from Gene Veritas on Vimeo.
The 'Let’s Talk about HD' campaign
CAVANAUGH: Misty Oto is ...
www.kpbs.org [cached]
CAVANAUGH: Misty Oto is board member of the San Diego Chapter of the Huntington's Disease Society of America.
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And, Misty, thanks for coming in.
MISTY OTO (Board Member, San Diego Chapter, Huntington's Disease Society of America): Oh, thank you, Maureen.
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Misty Oto is board member of the San Diego Chapter of the Huntington's Disease Society of America, and Kari Hartmann, a student, an intern at the Huntington Disease Society in San Diego.
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Misty, you're a board member with the San Diego chapter of the Huntington's Disease Society of America.
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OTO: You know, Maureen, this has been in my family for many generations.
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OTO: Absolutely.
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OTO: …so many people now in this generation that are coming up have no clue who this man was, and that really isn't a great face for Huntington's disease.
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OTO: Yeah. Yep, Woody Guthrie, yeah, he had Huntington's disease and that's what, you know, took him and actually that's how the Huntington's Disease Society of America started.
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I can't talk about it from a personal side but Misty, for example, can.
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CAVANAUGH: Misty, I know that after a long time thinking about it, you did get tested…
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OTO: You know, if you would ask me a year ago if I was going to be tested, I would've said no way. There's no reason. There's no cure. Why would I even put myself through that process?
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HARTMANN: Well, obviously it's something - I can't speak for Misty or anyone else affected with it but for myself at least, it's something that I've been thinking about.
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And like Misty was saying, just growing up and being a younger person with it in my family, growing up and watching it take my father and Misty described it perfectly.
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And as Misty was saying, there's really no reason to know other than to ease your mind. But…
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And it seems to me, Misty, it must be - it must just drive you crazy that they have to find a cure for this disease. What are the goals of your society?
OTO: You know, our goals used to be cure, cure, cure, now it's treatment.
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Dr. Jody Corey-Bloom, Misty Oto, Kari Hartmann, thank you.
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OTO: Thank you.
San Diego, California (NAPSI) - In ...
kxoradio.com [cached]
San Diego, California (NAPSI) - In the 14 years that her mother lived with Huntington's disease, the only time that Misty Oto saw her mother not move was when her heart stopped.
"It became a realization to me that no other families should have to go through this. They should not have to see their loved ones sedated in a bed, or subjecting themselves to injuries," said Oto, now an advocate with the Huntington's Disease Society of America.
San Diego, California (NAPSI) - In ...
www.kxoradio.com [cached]
San Diego, California (NAPSI) - In the 14 years that her mother lived with Huntington's disease, the only time that Misty Oto saw her mother not move was when her heart stopped.
"It became a realization to me that no other families should have to go through this. They should not have to see their loved ones sedated in a bed, or subjecting themselves to injuries," said Oto, now an advocate with the Huntington's Disease Society of America.
The Team Hope Walk: reinforcing the first line of defense against HD
www.hdsasandiego.org [cached]
Nan Pace, a JCC manager, served as event co-coordinator along with health researcher Misty Oto.
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Local HD families “know that they have a voice, that we are paying attention,†continued Oto, whose mother died of HD several years ago. Oto tested negative for HD but has a number of affected relatives.
HDSA has “struggled†with the need to strike a balance between research and families, Oto suggested. The Team Hope Walk “unified in one cause†three key aspects of its mission: research, fundraising, and awareness.
Misty Oto at 2012 walk Team Hope Walk co-coordinator Misty Oto running the charity raffle (photo by Gene Veritas)
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