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Clinical Research Coordinator
HQ Phone:  (619) 294-4302
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3003 4th Ave
San Diego, California,92103
Pacific Research Network (PRN) is a Southern California clinical research facility that specializes in examining new, investigational medications for the treatment of a variety of diseases. With clinic locations in San Diego and Rancho Bernardo, Pacific Rese... more.
Huntington's Disease Society of America
Board Member of the San Diego Chapter
San Diego, California (NAPSI) - In the 14 years that her mother lived with Huntington's disease, the only time that Misty Oto saw her mother not move was when her heart stopped.
"It became a realization to me that no other families should have to go through this. They should not have to see their loved ones sedated in a bed, or subjecting themselves to injuries," said Oto, now an advocate with the Huntington's Disease Society of America.
Senator Gillibrand introduces HD disability act
If you have any questions about the Huntington's Disease Parity Act, or about HDSA Advocacy, please contact Misty Oto or Jane Kogan.
HDSA-San Diego board member Misty Oto (photo by Teri Simas)
CAVANAUGH: Misty Oto is board member of the San Diego Chapter of the Huntington's Disease Society of America.
And, Misty, thanks for coming in. MISTY OTO (Board Member, San Diego Chapter, Huntington's Disease Society of America): Oh, thank you, Maureen. Misty Oto is board member of the San Diego Chapter of the Huntington's Disease Society of America, and Kari Hartmann, a student, an intern at the Huntington Disease Society in San Diego. Misty, you're a board member with the San Diego chapter of the Huntington's Disease Society of America. OTO: You know, Maureen, this has been in my family for many generations. OTO: Absolutely. OTO: …so many people now in this generation that are coming up have no clue who this man was, and that really isn't a great face for Huntington's disease. OTO: Yeah. Yep, Woody Guthrie, yeah, he had Huntington's disease and that's what, you know, took him and actually that's how the Huntington's Disease Society of America started. I can't talk about it from a personal side but Misty, for example, can. CAVANAUGH: Misty, I know that after a long time thinking about it, you did get tested… OTO: You know, if you would ask me a year ago if I was going to be tested, I would've said no way. There's no reason. There's no cure. Why would I even put myself through that process? HARTMANN: Well, obviously it's something - I can't speak for Misty or anyone else affected with it but for myself at least, it's something that I've been thinking about. And like Misty was saying, just growing up and being a younger person with it in my family, growing up and watching it take my father and Misty described it perfectly. And as Misty was saying, there's really no reason to know other than to ease your mind. But… And it seems to me, Misty, it must be - it must just drive you crazy that they have to find a cure for this disease. What are the goals of your society? OTO: You know, our goals used to be cure, cure, cure, now it's treatment. Dr. Jody Corey-Bloom, Misty Oto, Kari Hartmann, thank you. OTO: Thank you.