"Before, information for parents really varied from provider to provider," said Mike Carney, president of the Eastern Pennsylvania Down Syndrome Center in Trexlertown, Lehigh County.
"There was a lot of old information.
A lot of it was just not up to date."
In addition to treatment, the information will help parents understand where they can go to connect with support services, Down syndrome hot lines and national and local Down Syndrome organizations.
said much has improved when it comes to the genetic disorder, especially when it comes to life expectancy, early intervention and education options.
Life expectancy for someone with Down syndrome has increased dramatically, from 25 in 1983 to 60 today.
This new law gives parents an early chance to see what's possible for their children at a very early stage, he
"This is showing parents and parents-to-be that this is what they can do and what to expect," Carney
"We're (spreading) positive awareness about this and moving beyond some of the negativity that some of us have grown up with."
said the bill is not as much about politics and is more about helping patients.
"Anytime you can provide information to any patient that's factual and to the point, it helps to have an understanding about what's to come," he