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This profile was last updated on 9/27/11  and contains information from public web pages.

Regional Coordinator

Phone: (516) ***-****  HQ Phone
The HPS Network Inc
One South Road
Oyster Bay, New York 11771
United States

Company Description: The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for persons and families dealing with Hermansky-Pudlak Syndrome...   more
Background

Employment History

  • Network Regional Coordinator
    The HPS Network Inc
  • Regional Coordinator
    Network
  • Regional Coordinator
    HPS Network and ATS Foundation

Board Memberships and Affiliations

  • Volunteer Board
    Moses Cone Hospital
8 Total References
Web References
Tillman is honored by local hospital | Hermansky-Pudlak Syndrome Network
www.hpsnetwork.org, 27 Sept 2011 [cached]
Tillman is honored by local hospital
September 27, 2011
HPS Network Regional Coordinator Karen Tillman will be honored by Moses Cone Hospital on Sept. 27 th for volunteering more than 2,000 hours at the hospital. Tillman has served on the hospital's volunteer board, produced its volunteer newsletter, and spent many hours working at the discharge desk. She will be honored, with other awardees, at a gala dinner. Tillman has been able to use her connection with the hospital to outreach for HPS.
Mystery Diagnosis interviews Karen Tillman | Hermansky-Pudlak Syndrome Network
www.hpsnetwork.org, 27 May 2010 [cached]
Mystery Diagnosis interviews Karen Tillman
...
HPS Network Regional Coordinator Karen Tillman was interviewed by producers and a film crew from the popular Discovery Health television show Mystery Diagnosis May 20 - 22nd. The team traveled to Greensboro, N.C. and spent five hours interviewing Karen about her HPS diagnosis story.
...
"The process was tiring," says Karen. She spent hours on the phone with various producers from the filming company in the weeks leading up to the filming.
After the one-on-one interviews were completed at a local television studio, various scenes from Karen's medical life were re-created at her hospital using hired actresses to play Karen at various ages. Extras played the roles of doctors.
The final day was spent filming re-creations at Karen's home. Karen threw a barbeque party for all of her local friends and family that helped with the filming as well as her annual fundraiser, the Human Race. Unfortunately, because filming was still taking place inside the house, Karen was barely able to attend her own party!
Greensboro Human Race Team raises money for the HPS Network | Hermansky-Pudlak Syndrome Network
www.hpsnetwork.org, 20 Aug 2009 [cached]
The team was organized by Karen Tillman, the Network's regional coordinator. Walkers included: Ashley Breed, Carmela Espinosa, Lauren Hopkins, Bill Murray, Tommy Tillman, Holly Tillman, Karen Tillman and Blake Whitley.
September 2011 - Posts - Living on the Frontlines
community.albinism.org, 1 Sept 2011 [cached]
The Mystery Diagnosis episode featuring Hermansky-Pudlak Syndrome and Karen Tillman's story has aired in the Slovak Republic in Eastern Europe.
...
HPS Network Regional Coordinator Karen Tillman will be honored by Moses Cone Hospital on Sept. 27th for volunteering more than 2,000 hours at the hospital. Tillman has served on the hospital's volunteer board, produced its volunteer newsletter, and spent many hours working at the discharge desk. She will be honored, with other awardees, at a gala dinner. Tillman has been able to use her connection with the hospital to outreach for HPS. Posted Sep 27 2011, 03:37 PM by Living on the frontlines
North Carolina craft sales a success for the HPS Network | Hermansky-Pudlak Syndrome Network
www.hpsnetwork.org, 28 Nov 2009 [cached]
Tommy and Karen Tillman man the HPS craft booth Tommy and Karen Tillman man the HPS craft booth
Two craft sales in North Carolina raised $300 for the HPS Network in November. Karen Tillman managed both sales for the Network; one held for area non-profits at High Point Bank's Operation Center and the other held at Moses Cone hospital. Crafters that contributed goods to sale included: Karen Tillman, Heather Kirkwood and Fischlowitz-Leong.
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