American College of Medical Genetics

Description

ACMG provides the following privacy policy (the "Privacy Policy") in order to demonstrate our firm commitment to privacy. ACMG may need to change this Privacy Policy from time to time in order to address new issues and to reflect changes on our Site. Please refer back to this Privacy Policy regularly because your use of the Site signifies that you agree to be bound by the terms and conditions of this Privacy Policy, as amended from time to time.

a. Collection of Personal Information. ACMG may ask for information about our users at the point of registration. Such information may include name, age, education level, gender, e-mail address, zip code and areas of interest. This information tells us about the types of people (e.g., providers vs. patients, members vs. nonmembers) who use the Site, allows us to verify a user's identity and helps us tailor the Site to our audience.

b. Use of Personally Identifiable Information. ACMG will not sell or otherwise transfer or disclose personally identifiable information to third parties without the user's prior consent except as may be required by federal, state or local law, or by exigent circumstances. That means that ACMG will not disclose your name, e-mail address, street address or phone number without your consent. We may use your personally identifiable information to compile and display content and information that we think you might be interested in. ACMG also may use your profile information on an aggregate basis -- without personal identifiers -- to develop and display new features and content for the Site, and to provide others with aggregate information about our users and the usage patterns of the Site. ACMG also may perform statistical analyses of user behavior (on an aggregate basis) in order to measure interest in and use of the various areas of the Site.

c. Use of Personally Identifiable Information in the Member Directory and Expertise/Laboratory Databases. The ACMG Site also provides member profile and contact data such as name, address, telephone number, city, state, job title, and workplace to other members through the ACMG online directory. Other identifying information is not available. Users of the Site agree to use directory and database information for individual, personal and confidential reference purposes only and agree not to use the directory or databases, in whole or in part, for mailing lists, solicitations, fundraising or commercial purposes. Users of the Site further understand and agree that their names and contact information may be posted on this site in a membership database for access by members only. Such users agree to hold ACMG harmless from any and all claims arising out of or relating to the publication or display of their names and/or contact information.

d. Retention of User Information. It is not possible for a user to delete his or her profile from our database, nor is it feasible to delete all traces of a user's activity in the system. Messages posted to bulletin boards are examples of user activities that are not feasible to delete.

e. Voluntary Disclosure of Personally Identifiable Information on Bulletin Boards, News Groups and Chat Rooms, and other Interactive Areas (collectively "Interactive Areas"). Users should be aware that when they voluntarily disclose personally identifiable information (for example, user name, e-mail address) on an Interactive Area of the Site, that information, along with any substantive information disclosed in the user's communication, can be collected and correlated and used by third parties and may result in unsolicited messages from third parties. Such activities are beyond the control of ACMG and ACMG is not responsible for the discoverability of any user's identity by methods beyond our control.

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News Archive

Pioneering HHS HRSA Grant Funds Establishment of First National Newborn Screening Clearinghouse. AScribe Medicine News Service; 9/16/2009 ...needs of the public and providers. Therrell has served on both the American Academy of Pediatrics and American College of Medical Genetics Working Groups, defining current and future national activities in newborn screening. ABOUT GENETIC ALLIANCE... ...more

American College of Medical Genetics affirms importance of newborn screening dried blood spots. NewsRx Health & Science; 5/31/2009 The American College of Medical Genetics (ACMG) has issued a...Executive Director of the American College of Medical Genetics. There has been some...Genetics, Pediatrics, American College of Medical Genetics. This article ... ...more

SEN. KERRY LEGISLATION PROVIDES MEDICAL COVERAGE TO CHILDREN WITH RARE HEALTH DISORDER US Fed News Service, Including US State News; 11/11/2009 ...evaluation." The Medical Foods Equity Act is endorsed by more than forty health organizations including American College of Medical Genetics, the Children's Rare Disease Network, and Genetic Alliance.For more information please contact... ...more